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13. Children on dialysis as well as renal transplanted children report severely impaired health-related quality of life

Author

Splinter, A. (Anouck), Tjaden, L.A. (Lidwien A.), Haverman, L. (Lotte), Adams, B. (Brigitte), Collard, L. (Laure), Cransberg, K. (Karlien), van Dyck, M. (Maria), Hoeck, K. (Koen) van, Hoppe, B. (Bernd), Koster-Kamphuis, L. (Linda), Lilien, M. (Marc), Raes, A.K. (Ann), Taylan, C. (Christina), Grootenhuis, M.A. (Martha), Groothoff, J.W. (Jaap W.), Splinter, A. (Anouck), Tjaden, L.A. (Lidwien A.), Haverman, L. (Lotte), Adams, B. (Brigitte), Collard, L. (Laure), Cransberg, K. (Karlien), van Dyck, M. (Maria), Hoeck, K. (Koen) van, Hoppe, B. (Bernd), Koster-Kamphuis, L. (Linda), Lilien, M. (Marc), Raes, A.K. (Ann), Taylan, C. (Christina), Grootenhuis, M.A. (Martha), and Groothoff, J.W. (Jaap W.)

Abstract

Objectives: To assess health-related quality of life (HRQoL) across three renal replacement therapy modalities (preemptive transplant, non-preemptive transplant, and dialysis) in comparison with the healthy norm and other chronic health conditions, and to explore related patient factors. Study design: All prevalent end-stage renal disease (ESRD) patients aged 8–18 years who spent at least 6 months on their current treatment modality in the Netherlands, Belgium, and part of Germany were approached to complete the Pediatric Quality of Life Inventory 4.0 (PedsQL™) questionnaire. We determined the differences between groups on PedsQL™ mean scores, the proportion of children with an impaired HRQoL (≥ 1 SD lower than the healthy norm), the proportion of problems on individual items of the PedsQL™, and the effect of time on current treatment. Linear regression models were used to explore determinants of HRQoL. Results: 192 out of 278 patients (20% preemptive transplant, 58% non-preemptive transplant, 22% dialysis) filled in the PedsQL™ (response rate 69%). Independent of treatment modality, patients had significantly lower mean scores and consequently higher proportions of impaired HRQoL on almost all domains compared to the healthy norm and other chronic health conditions. Patients with a preemptive transplant only reported higher scores on physical health compared to the other treatment modalities. Having comorbidities was the most important determinant associated with lower HRQoL scores. Conclusion: Dialysis and renal transplantation both have a severe impact on the HRQoL of children with ESRD. Physicians should be aware of this continuous burden. Furthermore, to develop tailored interventions for children with ESRD, qualitative studies are needed to gain more insight in the determinants of HRQoL in the different tre

Published
2018
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14. Children on dialysis as well as renal transplanted children report severely impaired health-related quality of life

Author

Splinter, A, Tjaden, LA, Haverman, L, Adams, B, Collard, L, Cransberg, Karlien, van Dyck, M, van Hoeck, KJ, Hoppe, B, Koster-Kamphuis, L, Lilien, MR, Raes, A, Taylan, C, Grootenhuis, MA, Groothoff, JW, Splinter, A, Tjaden, LA, Haverman, L, Adams, B, Collard, L, Cransberg, Karlien, van Dyck, M, van Hoeck, KJ, Hoppe, B, Koster-Kamphuis, L, Lilien, MR, Raes, A, Taylan, C, Grootenhuis, MA, and Groothoff, JW

Published
2018

16. Ansätze zur Steigerung der körperlichen Aktivität von Patienten in Allgemeinarztpraxen - ein narrativer Review

Author

Van Dyck, M., Weber, A., Schelling, J., Kohls, N., Poggenburg, S., and Offenbächer, M.

Subjects
Hausarzt, ddc: 610, Intervention, 610 Medical sciences, Medicine, Körperliche Aktivität
Abstract

Hintergrund: Körperliche Aktivität (KA) ist ein wirkungsvolles Therapiemittel bei einer Vielzahl von Erkrankungen. In Deutschland wird das Mindestmaß an KA von 2,5 Stunden pro Woche gemäß der WHO aber nur von einem Fünftel der Bevölkerung erreicht. Die Allgemeinarztpraxis[zum vollständigen Text gelangen Sie über die oben angegebene URL], 50. Kongress für Allgemeinmedizin und Familienmedizin

Published
2016

17. Eine Forschungsidee zum Stellenwert und zur Bedeutung der Gesundheitsförderung aus Sicht von MedizinstudentInnen im Studium und im Fach Allgemeinmedizin

Author

Weber, A., Schelling, J., Kohls, N., Van Dyck, M., Nöfer, E., and Offenbächer, M.

Subjects
Gesundheitsförderung, ddc: 610, Studentische Ausbildung, 610 Medical sciences, Medicine, Prävention
Abstract

Hintergrund: Gesundheitsförderung (GF) und Prävention (PRÄ) gewinnen unter anderem aufgrund von demografischen Veränderungen sowie dem Anstieg an chronischen nicht-übertragbaren Erkrankungen, die zum Teil lebensstilbedingt sind, an gesellschaftspolitischer Bedeutung. In diesem[zum vollständigen Text gelangen Sie über die oben angegebene URL], 50. Kongress für Allgemeinmedizin und Familienmedizin

Published
2016

22. Conservative treatment for chronic renal failure from birth: a 3-year follow-up study

Author

Bilem N, Van Dyck M, and Willem Proesmans

Subjects
Male, Nephrology, medicine.medical_specialty, Diet therapy, medicine.medical_treatment, Urology, Sodium Chloride, Kidney, Bone and Bones, chemistry.chemical_compound, Internal medicine, Diet, Protein-Restricted, medicine, Humans, Renal osteodystrophy, Renal replacement therapy, Vitamin D, Creatinine, Hyperparathyroidism, business.industry, Body Weight, Age Factors, Infant, Newborn, Infant, medicine.disease, Body Height, Surgery, Radiography, Sodium Bicarbonate, medicine.anatomical_structure, chemistry, Child, Preschool, Pediatrics, Perinatology and Child Health, Kidney Failure, Chronic, Calcium, Female, business, Follow-Up Studies, Glomerular Filtration Rate, Kidney disease
Abstract

Fifteen children with chronic renal failure from early infancy who did not require renal replacement therapy were followed for 3 years. Chronic renal failure was defined as a serum creatinine at or above 1 mg/dl for the entire 1st year of life. These patients were treated conservatively with diet and supplements of sodium bicarbonate and sodium chloride, calcium and vitamin D. Erythropoietin was given to 5 patients. Neither nasogastric nor gastrostomy tube feeding was used, and none of the patients received recombinant human growth hormone. We analyzed length, weight, and head circumference at 3, 12, 24, and 36 months of age. All three variables displayed a significant drop in the first 3 months, but remained stable for the whole observation period thereafter. At the age of 3 years, the patients' mean values of length, weight, and head circumference standard deviation score were -1.96, -1.37, and -1.07, respectively. Height velocity during the 1st, 2nd, and 3rd year was 22.2, 10.9, and 7.6 cm per year, respectively. The first two figures and the cumulative height velocity are significantly better than those from a large cohort of chronic renal failure patients collected by the European Study Group for Nutritional Treatment of Chronic Renal Failure in Childhood; here the corresponding figures of height velocity were 12.3, 8.3, and 7.6 cm per year. Median serum calcium, phosphate, parathyroid hormone, and albumin levels remained within normal limits for the entire study period. Therapy-resistant hyperparathyroidism occurred in 1 patient and radiological signs of renal osteodystrophy in 4 patients. Kidney length, as measured by ultrasonography, showed almost no growth.

Published
1999

25. Oral Abstract session: Demanding measurements: why bother?: Thursday 4 December 2014, 16:30-18:00 * Location: Agora

Author

Saura Espin, D., primary, Caballero Jimenez, L., additional, Oliva Sandoval, M., additional, Gonzalez Carrillo, J., additional, Espinosa Garcia, M., additional, Garcia Navarro, M., additional, De La Morena, G., additional, Van Dyck, M., additional, Hulin, J., additional, De Kerchove, L., additional, Momeni, M., additional, Watremez, C., additional, Dreyfus, J., additional, Durand-Viel, G., additional, Cimadevilla, C., additional, Brochet, E., additional, Vahanian, A., additional, Messika-Zeitoun, D., additional, Nagy, A. I., additional, Apor, A., additional, Kovacs, A., additional, Manouras, A., additional, Andrassy, P., additional, Merkely, B., additional, Adamyan, K., additional, Tumasyan, L., additional, Chilingaryan, A., additional, Tunyan, L., additional, Barutcu, A., additional, Bekler, A., additional, Gazi, E., additional, Kirilmaz, B., additional, Temiz, A., additional, Altun, B., additional, Cole, G. D., additional, Dhutia, N., additional, Shun-Shin, M., additional, Willson, K., additional, Harrison, J., additional, Raphael, C., additional, Zolgharni, M., additional, Mayet, J., additional, and Francis, D., additional

Published
2014
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28. RENAL DEVELOPMENT AND CYSTIC DISEASES

Author

Cabrera-Lopez, C., primary, Ars, E., additional, Marti, T., additional, Harris, P. C., additional, Torra, R., additional, Clerckx, C., additional, Migeon, T., additional, Chen, Z., additional, Ronco, P., additional, Plaisier, E., additional, Lamers, I. J., additional, Van Reeuwijk, J., additional, Azam, M., additional, Boldt, K., additional, Maria, M., additional, Koster-Kamphuis, L., additional, Qamar, R., additional, Ueffing, M., additional, Cremers, F. P., additional, Roepman, R., additional, Arts, H. H., additional, Papizh, S., additional, Dlin, V., additional, Leontieva, I., additional, Tutelman, K., additional, Perrone, R. D., additional, Bae, K. T., additional, Chapman, A. B., additional, Devuyst, O., additional, Gansevoort, R. T., additional, Grantham, J. J., additional, Higashihara, E., additional, Torres, V. E., additional, Sergeyeva, O., additional, Zhou, W., additional, Blais, J. D., additional, Czerwiec, F. S., additional, Liu, F., additional, Liao, Y., additional, Fu, P., additional, Casteleijn, N., additional, Zittema, D., additional, Bakker, S., additional, Boertien, W., additional, Gaillard, C., additional, Meijer, E., additional, Spithoven, E., additional, Struck, J., additional, Gansevoort, R., additional, Robinson, P., additional, McEwan, P., additional, Hadimeri, H., additional, Ong, A. C. M., additional, Orskov, B., additional, Peces, R., additional, Sandford, R., additional, Scolari, F., additional, Walz, G., additional, Cooke, C., additional, O'Reilly, K., additional, Riwanto, M., additional, Kapoor, S., additional, Rodriguez, D., additional, Edenhofer, I., additional, Segerer, S., additional, Wuthrich, R. P., additional, De Rechter, S., additional, Bacchetta, J., additional, Van Dyck, M., additional, Evenepoel, P., additional, De Schepper, J., additional, Levtchenko, E., additional, Mekahli, D., additional, Carr, A., additional, Makin, A., additional, Baker, A., additional, Obeidova, L., additional, Stekrova, J., additional, Seeman, T., additional, Puchmajerova, A., additional, Reiterova, J., additional, Kohoutova, M., additional, Tesar, V., additional, Treille, S., additional, Bailly, J.-M., additional, Guillaume, B., additional, Tuta, L., additional, Stanigut, A., additional, Botea, F., additional, Jo, H. A., additional, Park, H. C., additional, Kim, H., additional, Han, M., additional, Huh, H., additional, Jeong, J. C., additional, Oh, K.-H., additional, Yang, J., additional, Koo, T. Y., additional, Hwang, Y.-H., additional, Ahn, C., additional, Pisani, A., additional, Remuzzi, G., additional, Ruggenenti, P., additional, Riccio, E., additional, Visciano, B., additional, Spinelli, L., additional, Kim, J. I., additional, Park, K. M., additional, Liu, F. X., additional, Rutherford, P., additional, Smoyer-Tomic, K., additional, Martinez Jimenez, V., additional, Comas, J., additional, Arcos, E., additional, Diaz, J. M., additional, Muray, S., additional, Cabezuelo, J., additional, Ballarin, J., additional, Miyaoka, T., additional, Morimoto, S., additional, Kataoka, H., additional, Mochizuki, T., additional, Tsuchiya, K., additional, Ichihara, A., additional, and Nitta, K., additional

Published
2014
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29. CYSTIC DISEASE AND CILIOPATHIES

Author

Hoshino, J., primary, Suwabe, T., additional, Sumida, K., additional, Mise, K., additional, Hayami, N., additional, Kawada, M., additional, Imafuku, A., additional, Hiramatsu, R., additional, Hasegawa, E., additional, Sawa, N., additional, Ubara, Y., additional, Takaichi, K., additional, Yamamoto, J., additional, Ishikawa, Y., additional, Nakagaki, T., additional, Shibazaki, S., additional, Nishio, S., additional, Atsumi, T., additional, Westland, R., additional, Verbitsky, M., additional, Vukojevic, K., additional, Perry, B. J., additional, Fasel, D. A., additional, Zwijnenburg, P. J. G., additional, Gille, J. J. P., additional, Bokenkamp, A., additional, D'Agati, V. D., additional, Gharavi, A. G., additional, Schreuder, M. F., additional, Van Wijk, J. A. E., additional, Sanna-Cherchi, S., additional, Rodriguez, D., additional, Riwanto, M., additional, Edenhofer, I., additional, Segerer, S., additional, Wuthrich, R. P., additional, Kapoor, S., additional, Raaijmakers, A. M. J., additional, Mekahli, D., additional, Van Dyck, M., additional, Corveleyn, A., additional, Allegaert, K., additional, Deviendt, K., additional, Kuypers, D., additional, Claes, K., additional, and Levtchenko, E. N., additional

Published
2014
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31. Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a part of Germany have impaired health-related quality of life compared with Western children

Author

Schoenmaker, N. J., primary, Haverman, L., additional, Tromp, W. F., additional, van der Lee, J. H., additional, Offringa, M., additional, Adams, B., additional, Bouts, A. H. M., additional, Collard, L., additional, Cransberg, K., additional, van Dyck, M., additional, Godefroid, N., additional, van Hoeck, K., additional, Koster-Kamphuis, L., additional, Lilien, M. R., additional, Raes, A., additional, Taylan, C., additional, Grootenhuis, M. A., additional, and Groothoff, J. W., additional

Published
2013
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38. Het tekort aan technisch opgeleiden

Author

Groot, W.J.N., Maassen van den Brink, H., Plug, E.J.S., van Wieringen, A.M.L., van Dyck, M., Hövels, B.W.M., Nijhof, W.J., and ASE RI (FEB)

Published
2000

41. De werking van scholingsfondsen

Author

Waterreus, J.M., van Wieringen, A.M.L., Nijhof, W.J., van Dyck, M., Hovels, B.W.M., and ASE RI (FEB)

Published
1999

46. Vraag en aanbod van opleidingen

Author

Houtkoop, W.A., Oosterbeek, H., Nijhoff, W.J., Hovels, B.W.M., Wieringen, A.M.L., van Dyck, M., and ASE RI (FEB)

Published
1997

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