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165 results on '"van Leeuwen, Kathleen"'

1. It became easier once I knew: Stakeholder perspectives for educating children and teenagers about their difference of sex development.

Author

Weidler, Erica, Suorsa-Johnson, Kristina, Baskin, Alison, Fagerlin, Angela, Gardner, Melissa, Rutter, Meilan, Schafer-Kalkhoff, Tara, van Leeuwen, Kathleen, and Sandberg, David

Subjects
Differences of sex development, Disclosure, Disorders of sex development, Education, Intersex, Adult, Humans, Child, Adolescent, Parents, Health Personnel, Educational Status, Shame, Sexual Development
Abstract

OBJECTIVE: Secrecy about a childs difference of sex development (DSD) can lead to internalized shame and stigma. We explored how teenagers and adults with DSD, parents, healthcare providers, and allied professionals value and perceive patient education. METHODS: Stakeholders (n = 110) completed qualitative semi-structured interviews. Relevant themes for educational content were queried and organized. RESULTS: Education was consistently identified as essential to successful outcomes. There was less consistency in how to educate patients. Disagreement existed regarding who should champion the education process. Participants believed medically relevant information should be shared gradually with attention to developmental capacity. Details were lacking regarding how much or what information to share. Participants noted that vetted resources were helpful. Benefits of sharing condition-specific information with patients included supporting their psychosocial development. Barriers included parental resistance to sharing information due to shame/stigma, and cultural and/or family dynamics. CONCLUSIONS: Stakeholders different perspectives regarding patient DSD education warrant future research to focus on the design, evaluation, and implementation of education-focused interventions. PRACTICE IMPLICATIONS: Healthcare providers are responsible for supporting the education of children and teenagers with DSD about their condition. When considering barriers, adopting a cultural or family systems framework can reduce parental resistance and promote open dialogue.

Published
2023

5. Variation in Practice Surrounding Antegrade Colonic Enema Channel Placement

Author

Kwon, Eustina G., Kreiss, Jenny, Nicassio, Lauren, Austin, Kelly, Avansino, Jeffrey R., Badillo, Andrea, Calkins, Casey M., Crady, Rachel C., Dickie, Belinda, Durham, Megan M., Frischer, Jason, Fuller, Megan K., Speck, K. Elizabeth, Reeder, Ron W., Rentea, Rebecca, Rollins, Michael D., Saadai, Payam, Wood, Richard J., van Leeuwen, Kathleen D., Smith, Caitlin A., and Rice-Townsend, Samuel E.

Published
2024
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6. Does Delayed Diagnosis of Hirschsprung Disease Impact Post-operative and Functional Outcomes? A Multi-Center Review From the Pediatric Colorectal and Pelvic Learning Consortium

Author

Ullrich, Sarah, Austin, Kelly, Avansino, Jeffrey R., Badillo, Andrea, Calkins, Casey M., Crady, Rachel C., Durham, Megan M., Fuller, Megan K., Rana, Ankur, Reeder, Ron W., Rentea, Rebecca M., Rollins, Michael D., Saadai, Payam, Speck, K. Elizabeth, Wood, Richard J., van Leeuwen, Kathleen, and Frischer, Jason S.

Published
2024
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8. Comparison of the PCPLC Database to NSQIP-P: A Patient Matched Comparison of Surgical Complications Following Repair of Anorectal Malformation

Author

McNevin, Kathryn, Nicassio, Lauren, Rice-Townsend, Samuel E., Katz, Cindy B., Goldin, Adam, Avansino, Jeffrey, Calkins, Casey M., Durham, Megan M., Page, Kent, Ralls, Matthew W., Reeder, Ron W., Rentea, Rebecca M., Rollins, Michael D., Saadai, Payam, Wood, Richard J., van Leeuwen, Kathleen D., and Smith, Caitlin A.

Published
2024
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14. Rectal Prolapse Following Repair of Anorectal Malformation: Incidence, Risk Factors, and Management

Author

Iantorno, Stephanie E., Rollins, Michael D., Austin, Kelly, Avansino, Jeffrey R., Badillo, Andrea, Calkins, Casey M., Crady, Rachel C., Dickie, Belinda H., Durham, Megan M., Frischer, Jason S., Fuller, Megan K., Grabowski, Julia E., Ralls, Matthew W., Reeder, Ron W., Rentea, Rebecca M., Saadai, Payam, Wood, Richard J., van Leeuwen, Kathleen D., and Short, Scott S.

Published
2023
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16. Does presence of a VACTERL anomaly predict an associated gynecologic anomaly in females with anorectal malformations?: A Pediatric Colorectal and Pelvic Learning Consortium Study

Author

Ahmad, Hira, Wood, Richard J., Avansino, Jeffrey R., Calkins, Casey M., Dickie, Belinda Hsi, Durham, Megan M., Frischer, Jason, Fuller, Megan, Ralls, Matt, Reeder, Ron W., Rentea, Rebecca M., Rollins, Michael D., Saadai, Payam, Oelschlager, Anne-Marie E. Amies, Breech, Lesley L., Hewitt, Geri D., Kluivers, Kirsten, van Leeuwen, Kathleen D., and McCracken, Katherine A.

Published
2023
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17. Fecal continence disparities in patients with idiopathic constipation treated at referral institutions for pediatric colorectal surgery

Author

Smith, Caitlin A., Kwon, Eustina G., Nicassio, Lauren, Glazer, Deb, Avansino, Jeffrey, Durham, Megan M., Frischer, Jason, Calkins, Casey, Rentea, Rebecca M., Ralls, Matthew, Saadai, Payam, Badillo, Andrea, Fuller, Megan, Wood, Richard J., Rollins, Michael D., Van Leeuwen, Kathleen, Reeder, Ron W., Lewis, Katelyn E., and Rice-Townsend, Samuel E.

Published
2023
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18. The presence of a neurodiverse disorder is associated with increased use of antegrade enema therapy in children with severe constipation: A study from the Pediatric Colorectal and Pelvic Learning Consortium (PCPLC)

Author

Short, Scott S, Reeder, Ron W, Lewis, Katelyn E, Dickie, Belinda, Grabowski, Julia, Sepuha, Taylor, Durham, Megan M, Frischer, Jason, Badillo, Andrea, Calkins, Casey M, Rentea, Rebecca M., Ralls, Matt, Wood, Richard J, Fuller, Megan K, van Leeuwen, Kathleen, Avansino, Jeffrey R, Austin, Kelly, and Rollins, Michael D

Published
2022
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21. Disorders of Sex Development

Author

Lofberg, Katrine, van Leeuwen, Kathleen, Abdel-Latif, Mohammed, Ross, Andrew R., Elhalaby, Essam A., Ameh, Emmanuel A., editor, Bickler, Stephen W., editor, Lakhoo, Kokila, editor, Nwomeh, Benedict C., editor, and Poenaru, Dan, editor

Published
2020
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24. Outcomes From Colonic Pull-Through for Cloacal Exstrophy Differ by Colon Length: A Multi-Institutional Study

Author

Srinivas, Shruthi, primary, Knaus, Maria E., additional, Avansino, Jeffrey R., additional, Badillo, Andrea, additional, Calkins, Casey M., additional, Dickie, Belinda H., additional, Durham, Megan M., additional, Fuller, Megan K., additional, Ralls, Matthew W., additional, Reeder, Ron W., additional, Rentea, Rebecca M., additional, Rollins, Michael D., additional, van Leeuwen, Kathleen, additional, and Wood, Richard J., additional

Published
2023
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33. Does presence of a VACTERL anomaly predict an associated gynecologic anomaly in females with anorectal malformations?: A pediatric colorectal and pelvic learning consortium study

Author

Ahmad, Hira, primary, Wood, Richard J., additional, Avansino, Jeffrey R., additional, Calkins, Casey M., additional, Dickie, Belinda Hsi, additional, Durham, Megan M., additional, Frischer, Jason, additional, Fuller, Megan, additional, Ralls, Matt, additional, Reeder, Ron W., additional, Rentea, Rebecca M., additional, Rollins, Michael D., additional, Saadai, Payam, additional, Oelschlager, Anne-Marie E. Amies, additional, Breech, Lesley L., additional, Hewitt, Geri D., additional, Kluivers, Kirsten, additional, van Leeuwen, Kathleen D., additional, and McCracken, Katherine A., additional

Published
2022
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34. Telehealth multidisciplinary prenatal consultation during the COVID-19 pandemic: enhancing patient care coordination while maintaining high provider satisfaction

Author

Hargis-Villanueva, Angela, primary, Lai, Krista, additional, van Leeuwen, Kathleen, additional, Weidler, Erica M., additional, Felts, Jessica, additional, Schmidt, Alicia, additional, Franklin, Wayne J., additional, Lindblade, Christopher, additional, Martin, Gregory C., additional, Patil, Avinash S., additional, and Goncalves, Luis F., additional

Published
2022
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35. Defining successful outcomes and preferences for clinical management in differences/disorders of sex development: Protocol overview and a qualitative phenomenological study of stakeholders' perspectives

Author

Suorsa-Johnson, Kristina I., primary, Gardner, Melissa D., additional, Baskin, Alison, additional, Gruppen, Larry D., additional, Rose, Angela, additional, Rutter, Meilan M., additional, Schafer-Kalkhoff, Tara, additional, Stacey, Dawn, additional, van Leeuwen, Kathleen D., additional, Weidler, Erica M., additional, and Sandberg, David E., additional

Published
2022
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36. High Infertility Rates and Pregnancy Complications in Female Physicians Indicate a Need for Culture Change.

Author

Lai, Krista, Garvey, Erin M., Velazco, Cristine S., Gill, Manrit, Weidler, Erica M., van Leeuwen, Kathleen, Kim, Eugene S., Rangel, Erika L., and Grimsby, Gwen M.

Abstract

Objective: This survey study aims to determine the prevalence of pregnancy complications and infertility in female physicians in comparison to the general population. Risk factors, workplace environment, and education are also examined. Background: Physicians undertake long training and have stressful work environments during optimal childbearing years. While growing literature indicates increased rates of pregnancy complications and infertility in female surgeons, the prevalence in female physicians of all specialties is unknown. Methods: An anonymous, voluntary survey was distributed to female physicians via private physician social media groups. It queried pregnancy demographics and complications, infertility diagnosis and treatment, workplace environment, and prior education on these topics. Results were compared with general population data, between medical and surgical subspecialties, and between physicians who were and were not educated on the risks of delaying pregnancy. Results: A total of 4533 female physicians completed the survey. Compared with the general population, female physicians were older at first pregnancy, more often underwent infertility evaluation and treatment, and had higher rates of miscarriage and preterm birth. During training, only 8% of those surveyed received education on the risks of delaying pregnancy. Those who were educated were significantly less likely to experience miscarriage or seek infertility evaluation or treatment. Compared with physicians in nonsurgical specialties, surgeons had fewer children, were older at first pregnancy, had more preterm births and fetal growth problems, and were more likely to be discouraged from starting a family during training and practice. Conclusions: Female physicians, particularly surgeons, have a significantly greater incidence of miscarriage, infertility, and pregnancy complications compared with the general population. The culture of medicine and surgery must continue to evolve to better support women with family planning during their training and careers. [ABSTRACT FROM AUTHOR]

Published
2023
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39. Perioperative and long-term functional outcomes of neonatal versus delayed primary endorectal pull-through for children with Hirschsprung disease: A pediatric colorectal and pelvic learning consortium study

Author

Kastenberg, Zachary J., primary, Taylor, Mark A., additional, Durham, Megan M., additional, Calkins, Casey M., additional, Rentea, Rebecca M., additional, Wood, Richard J., additional, Avansino, Jeffrey R., additional, Levitt, Marc A., additional, van Leeuwen, Kathleen D., additional, Lewis, Katelyn E., additional, Reeder, Ron W., additional, and Rollins, Michael D., additional

Published
2021
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40. 30-day postoperative outcomes of neonatal versus delayed anoplasty for perineal and vestibular fistulas

Author

Marenco, Christopher W., primary, Rice-Townsend, Samuel, additional, Rollins, Michael, additional, Wood, Richard J., additional, Calkins, Casey, additional, Smith, Caitlin, additional, Durham, Megan M., additional, Rentea, Rebecca M., additional, Ralls, Matt, additional, Van Leeuwen, Kathleen, additional, Reeder, Ron W., additional, and Avansino, Jeffrey, additional

Published
2021
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45. "Good practices" in pediatric clinical care for disorders/differences of sex development.

Author

Kavanaugh, Grace L., Mohnach, Lauren, Youngblom, Janey, Kellison, Joshua G., Sandberg, David E., in collaboration with Accord Alliance, Weidler, Erica M., and van Leeuwen, Kathleen

Abstract

Purpose: To define, benchmark, and publicize elements of quality care (i.e., "good practices") for pediatric patients with disorders/differences of sex development (DSD). Methods: Principles of quality care were identified by literature review; consensus exists for 11 good practices and adherence was evaluated through online survey of 21 North American clinical sites. Results: Strong uptake was observed for many practices, particularly specialty participation (n ≥ 17 of 21 sites for most core specialties); point of contact (n = 18); expertise in gender dysphoria/dissatisfaction (n = 20); and DSD-specific continuing medical education (n = 18). Greater variability was apparent for frequency of peer support referrals (n = 12 universally practiced); standardized questionnaires for routine assessment of psychosocial adaptation (n = 13) and gender development (n = 10); consistently clarifying patient/family values in decision-making (n = 15); genital exam protocols that exclude trainee education as primary reason (n = 15); and internal patient-tracking efforts (n = 5–10 of 20 sites). Conclusion: This study employed a novel approach to designate DSD good practices and identified areas of consistency and variation in these DSD clinical practices. Good practice benchmarking facilitates quality assessment within and across sites, promotes continuous improvement, and empowers stakeholders in locating and delivering high quality care. [ABSTRACT FROM AUTHOR]

Published
2021
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