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Older adults' experiences of transitions between care settings at the end of life in England: a qualitative interview study.

Authors :
Hanratty B
Holmes L
Lowson E
Grande G
Addington-Hall J
Payne S
Seymour J
Hanratty, Barbara
Holmes, Louise
Lowson, Elizabeth
Grande, Gunn
Addington-Hall, Julia
Payne, Sheila
Seymour, Jane
Source :
Journal of Pain & Symptom Management. 2012 Jul, Vol. 44 Issue 1, p74-83. 10p.
Publication Year :
2012

Abstract

<bold>Context: </bold>Providing care that is shaped around the needs of patients, carers, and families is a challenge in the last months of life, as moves between home and institutions may be frequent. Despite this, there have been few studies of end-of-life transitions in the U.K.<bold>Objectives: </bold>To explore older adults' experiences as they move between places of care at the end of life.<bold>Methods: </bold>In-depth qualitative interviews and thematic analysis of the data were performed. Thirty adults aged between 69 and 93 years took part. All were judged by their physicians to be in the last year of life, diagnosed with heart failure (13), lung cancer (14), and stroke (3). Sixteen participants were from the lowest socioeconomic groups.<bold>Results: </bold>Four themes were identified from the data relating to 1) the prioritization of institutional processes, 2) support across settings, 3) being heard, and 4) dignity. As they moved between different settings, much of the care received by older adults was characterized by inflexibility and a failure of professional carers to listen. Liaison between and within services was not always effective, and community support after a hospital admission was perceived to be, on occasions, absent, inappropriate, or excessive.<bold>Conclusion: </bold>Qualitative study of transitions provides valuable insights into end-of-life care, even in countries where there are few financial barriers to services. This study has highlighted a need for continued attention to basic aspects of care and communication between professionals and with patients. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
08853924
Volume :
44
Issue :
1
Database :
Academic Search Index
Journal :
Journal of Pain & Symptom Management
Publication Type :
Academic Journal
Accession number :
108065708
Full Text :
https://doi.org/10.1016/j.jpainsymman.2011.08.006