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From ‘trial community’ to ‘experimental publics’: how clinical research shapes public participation.
- Source :
-
Critical Public Health . Feb2017, Vol. 27 Issue 1, p50-62. 13p. - Publication Year :
- 2017
-
Abstract
- In relation to clinical trials, it is far more usual to speak of the community (singular, static) than of publics (multiple, emergent). Rarely defined, the community is commonly taken to be the existing people in a given area, which the trial will engage, mobilise or sensitise to facilitate successful recruitment and retention. Communities are assumed to pre-exist the research, to be timeless, and to be a whole (sometimes consisting of different parts, referred to as stakeholder groups). In this paper, we suggest a conceptual shift from ‘trial community’ to ‘experimental publics’. Using an empirical case study of an HIV prevention trial in Zambia, we draw out the following key points: firstly, publics do not pre-exist research activities but are enacted in concert with them. Secondly, publics are dynamic and transient. And thirdly, experimental publics are situated at the intersection of various forms of inclusion and exclusion, both locally and globally. Our findings emphasise the need to create long-term forms of participation in science, which transcend both the instrumental goals and the individual timelines of specific trials. [ABSTRACT FROM PUBLISHER]
- Subjects :
- *HIV prevention
*CONTROL (Psychology)
*ANTI-infective agents
*CLINICAL trials
*COMMUNITIES
*CONCEPTUAL structures
*FOCUS groups
*GROUNDED theory
*INTERPERSONAL relations
*INTERVIEWING
*RESEARCH methodology
*HEALTH policy
*MEDICAL protocols
*PUBLIC opinion
*RESEARCH funding
*HUMAN sexuality
*GENDER role
*SPOUSES
*TRUST
*VAGINAL medication
*WOMEN'S health
*PATIENT participation
*QUALITATIVE research
*GOVERNMENT policy
*ACQUISITION of data
*HUMAN research subjects
*PATIENT selection
*HEALTH literacy
*DATA analysis software
*DESCRIPTIVE statistics
Subjects
Details
- Language :
- English
- ISSN :
- 09581596
- Volume :
- 27
- Issue :
- 1
- Database :
- Academic Search Index
- Journal :
- Critical Public Health
- Publication Type :
- Academic Journal
- Accession number :
- 119952813
- Full Text :
- https://doi.org/10.1080/09581596.2016.1212161