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Characterizing the Biomedical Data-Sharing Landscape.
- Source :
-
Journal of Law, Medicine & Ethics . Spring2019, Vol. 47 Issue 1, p21-30. 10p. 1 Diagram, 1 Chart. - Publication Year :
- 2019
-
Abstract
- Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe. [ABSTRACT FROM AUTHOR]
Details
- Language :
- English
- ISSN :
- 10731105
- Volume :
- 47
- Issue :
- 1
- Database :
- Academic Search Index
- Journal :
- Journal of Law, Medicine & Ethics
- Publication Type :
- Academic Journal
- Accession number :
- 135929126
- Full Text :
- https://doi.org/10.1177/1073110519840481