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Characterizing the Biomedical Data-Sharing Landscape.

Authors :
Villanueva, Angela G.
Cook-Deegan, Robert
Koenig, Barbara A.
Deverka, Patricia A.
Versalovic, Erika
McGuire, Amy L.
Majumder, Mary A.
Source :
Journal of Law, Medicine & Ethics. Spring2019, Vol. 47 Issue 1, p21-30. 10p. 1 Diagram, 1 Chart.
Publication Year :
2019

Abstract

Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
10731105
Volume :
47
Issue :
1
Database :
Academic Search Index
Journal :
Journal of Law, Medicine & Ethics
Publication Type :
Academic Journal
Accession number :
135929126
Full Text :
https://doi.org/10.1177/1073110519840481