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Genetic information: a joint account?

Authors :
Parker, Michael
Lucassen, Anneke
Source :
BMJ: British Medical Journal (International Edition). 7/17/2004, Vol. 329 Issue 7458, p165-167. 3p. 1 Color Photograph.
Publication Year :
2004

Abstract

Examines the ethical issue of who owns genetic information. Example of case where a woman, whose young son was diagnosed with Duchenne's muscular dystrophy, proved to be the carrier of the disease; How her sister was pregnant and said she would abort the pregnancy if the child she carried had also inherited the disease; Decision of the child's mother not to release test results and information about her son even to her sister; Dilemma of the treating doctors; Options; Medical ethics of the personal account model of patient confidentiality; Ethics of the joint account model of information sharing; Belief that in the field of genetic medicine, the joint account model should be followed.

Details

Language :
English
ISSN :
09598146
Volume :
329
Issue :
7458
Database :
Academic Search Index
Journal :
BMJ: British Medical Journal (International Edition)
Publication Type :
Academic Journal
Accession number :
13798119
Full Text :
https://doi.org/10.1136/bmj.329.7458.165