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Extending Advance Care Planning to Black Americans in the Community: A Pilot Study of the PREPARE Program.

Authors :
Skolarus, Lesli E.
Brown, Devin L.
Corches, Casey L.
Reynolds, Evan
Bailey, Sarah
Mansour, Maria
Robles, Maria Cielito
Rice, Tia
Springer, Mellanie V.
Burke, James F.
Sudore, Rebecca L.
Source :
Journal of Pain & Symptom Management. Jul2021, Vol. 62 Issue 1, pe4-e9. 6p.
Publication Year :
2021

Abstract

<bold>Context: </bold>Advance care planning (ACP) is underutilized, especially among Black Americans. Yet, no ACP interventions have been tested at the community level.<bold>Objectives: </bold>Within an established academic and community partnership, we sought to determine whether ACP is a community-identified need and if so, to conduct a pilot study of an evidence-based ACP program, PREPARE (PrepareForYourCare.org).<bold>Methods: </bold>We conducted open discussions and in-depth interviews to determine the relevance of ACP to the community. We then conducted a pre- to 3-week postpilot study of a virtual peer facilitated brief session to introduce ACP and encourage participants to engage with PREPARE. We conducted thematic content analysis for qualitative data and used paired t-tests to assess within-participant changes in the validated ACP Engagement Survey measured on a 1-5 scale (5 = greatest engagement).<bold>Result: </bold>We conducted two discussion groups with community leaders (n = 12) and key informant interviews (n = 6), including leaders in aging, public health, health care and faith. We concluded that ACP is a community priority. In the pilot study, we enrolled 13 Black Americans; 85% were women and the mean age was 59.7 years (SD 15.1). There was a trend toward increased ACP engagement after the peer facilitated PREPARE (mean 3.2 (SD 0.6) pre vs. 3.5 (SD 0.6) post, paired t-test P = 0.06). All participants found the intervention to be acceptable and were satisfied with it.<bold>Conclusion: </bold>Community members identified ACP as important for their community. Peer facilitated PREPARE program is a promising community-based strategy to increase engagement in ACP and may promote health equity. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
08853924
Volume :
62
Issue :
1
Database :
Academic Search Index
Journal :
Journal of Pain & Symptom Management
Publication Type :
Academic Journal
Accession number :
150969137
Full Text :
https://doi.org/10.1016/j.jpainsymman.2021.02.029