Back to Search Start Over

Contributing Factors of Unmet Needs Among Young Adult Survivors of Childhood Acute Lymphoblastic Leukemia with Comorbidities.

Contributing Factors of Unmet Needs Among Young Adult Survivors of Childhood Acute Lymphoblastic Leukemia with Comorbidities.

Authors :
Lamore, Kristopher
Bourdeau, Camille
Alos, Nathalie
Bertout, Laurence
Curnier, Daniel
Drouin, Simon
Krajinovic, Maja
Laverdière, Caroline
Lippé, Sarah
Marcil, Valérie
Robaey, Philippe
Rondeau, Émélie
Sinnett, Daniel
Sultan, Serge
Source :
Journal of Adolescent & Young Adult Oncology. Aug2021, Vol. 10 Issue 4, p462-475. 14p.
Publication Year :
2021

Abstract

Purpose: This study aimed to: (1) describe the domains and levels of unmet needs of young adult survivors of childhood acute lymphoblastic leukemia (cALL) with comorbidities, and (2) to explore the factors associated with higher levels of unmet needs. Unmet need was considered as supportive care needs not met. Methods: The most vulnerable cALL survivors from the PETALE study cohort completed the Short-Form Survivor Unmet Needs Survey, the Brief Pain Inventory and the 15D instrument of health-related quality of life. Demographic and clinical information, including comorbidities, were obtained from medical records or self-reporting. The participants' needs and contributing factors to their needs were evaluated using nonparametric tests. Results: Of the 72 participants, 9 (13%) reported moderate/high levels of overall unmet needs. "Worry about earning money" (56%) and "Dealing with feeling tired" (51%) were the most frequent unmet needs (all levels combined). The factors associated significantly with any domain of unmet needs were: having a comorbidity, reporting altered functional health status, high ALL risk status, pain, age (<26 years), and having previously received psychological support. Conclusion: A minority of young adult survivors of cALL with comorbidities interviewed reported moderate/high levels of unmet needs. However, financial concerns and emotional health and relationship are the two domains of greatest need. Survivors with altered health condition are most at risk of experiencing moderate/high levels of unmet needs. If confirmed in larger samples, interventions should target modifiable contributors of unmet needs such as physical health and comfort, fatigue, and emotional health. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
21565333
Volume :
10
Issue :
4
Database :
Academic Search Index
Journal :
Journal of Adolescent & Young Adult Oncology
Publication Type :
Academic Journal
Accession number :
151875456
Full Text :
https://doi.org/10.1089/jayao.2020.0090