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Parent Perspectives after the PRISM-P Randomized Trial: A Mixed-Methods Analysis.
- Source :
-
Journal of Palliative Medicine . Oct2021, Vol. 24 Issue 10, p1505-1515. 11p. - Publication Year :
- 2021
-
Abstract
- Background: Parents experience high distress following their child's diagnosis of cancer. We previously tested two delivery models (group and one-on-one) of the "Promoting Resilience in Stress Management for Parents" (PRISM-P) intervention in a randomized trial: one-on-one delivery improved resilience and benefit finding at three months when compared to usual care (UC). Objective: The objective of this analysis was to evaluate quantitative and qualitative outcomes at six months. Design: In this single-center, phase 2, parallel, 1:1:1 randomized trial conducted December 2016 to December 2018, English-speaking parents with a 2ā24 year-old child diagnosed with new cancer were randomly assigned to UC, one-on-one, or group PRISM-P, a brief, skill-based curriculum targeting stress management, goal setting, cognitive reframing, and meaning making. We collected parent-reported outcomes (resilience, benefit finding, and psychological distress) at baseline and three and six months. We applied linear mixed-effects regression models to examine six-month outcomes among all participants and conducted directed content analyses of exit interviews with the first 12 parents to complete each study arm. Results: The 94 participating parents were median aged 35ā38 years and predominantly white, college-educated mothers. At six months, there was no statistically significant difference in parent-reported outcomes. Exit interviews (nā=ā36) suggested that PRISM-P was highly valued: 100% of interviewed recipients recommended it for other parents. Most suggested more coaching would help them retain skills, and almost all endorsed a combined one-on-one and group program. Conclusions: Although the PRISM-P benefits observed at three months were not sustained for six months, all interviewed parents found it valuable. Additional opportunities to strengthen and sustain resilience resources include longer follow-up, flexible format, and skill reinforcement. Trial Registration: NCT02998086. [ABSTRACT FROM AUTHOR]
- Subjects :
- *PARENT attitudes
*CAREGIVERS
*RESEARCH methodology
*QUANTITATIVE research
*COGNITION
*REGRESSION analysis
*INTERVIEWING
*TUMORS in children
*QUALITATIVE research
*STRESS management
*DESCRIPTIVE statistics
*PSYCHOLOGICAL resilience
*PARENTS
*PSYCHOLOGICAL distress
*GOAL (Psychology)
*PALLIATIVE treatment
Subjects
Details
- Language :
- English
- ISSN :
- 10966218
- Volume :
- 24
- Issue :
- 10
- Database :
- Academic Search Index
- Journal :
- Journal of Palliative Medicine
- Publication Type :
- Academic Journal
- Accession number :
- 152765141
- Full Text :
- https://doi.org/10.1089/jpm.2020.0720