Back to Search
Start Over
People with aphasia share their views on self-management and the role of technology to support self-management of aphasia.
- Source :
-
Disability & Rehabilitation . Dec2022, Vol. 44 Issue 24, p7399-7412. 14p. - Publication Year :
- 2022
-
Abstract
- Self-management can lead to increased self-efficacy and improved quality of life for individuals with chronic conditions; however, there is little research exploring how self-management approaches can be used for chronic communication disorders, such as aphasia. Modifications to self-management approaches would be required to accommodate for aphasia; therefore, the input of people with aphasia (PwA) should be sought. The aims of the present study were: (1) To investigate and document the experiences and perspectives of PwA regarding self-management; (2) To explore how technology can be used to support aphasia self-management. In-depth, semi-structured interviews were conducted with 26 PwA living in Australia. Qualitative content analysis was used to analyse interview data. Analysis resulted in six themes: (1) In self-management, PwA take control of life with aphasia and assume responsibility for engaging in opportunities to improve overall communication; (2) Community aphasia groups are important enablers of self-management because they facilitate peer support; (3) Communication partners (CPs) provide multifaceted support in aphasia self-management; (4) SLPs provide integrated support and coordination in aphasia self-management; (5) Technology supports PwA to self-manage speech therapy and communication in daily life; (6) Psychological and physical health issues and societal factors may impact aphasia self-management abilities. From the perspective of PwA, aphasia self-management involves enhancing skills enabling communication and life participation. PwA are central to aphasia self-management, with support provided by CPs, peers, and SLPs. Technology has a range of applications in aphasia self-management. PwA identified potential personal and contextual barriers that may impact self-management. For people with aphasia, engaging in conversation and social interaction are primary means of managing/improving communicative life participation; therefore, this should be a key focus of aphasia self-management programs. Aphasia self-management approaches should maximise the use of available support and provide tailored information, education, and training in the area of self-management to key stakeholders (people with aphasia, communication partners, and speech-language pathologists). People with aphasia should be supported to use technology for aphasia self-management, encompassing communication specific and daily life use. People with aphasia should be heavily involved in the development of structured aphasia self-management approaches. [ABSTRACT FROM AUTHOR]
- Subjects :
- *AFFINITY groups
*OCCUPATIONAL roles
*HEALTH education
*SOCIAL support
*CONFIDENCE
*SELF-management (Psychology)
*RESEARCH methodology
*INTERVIEWING
*HEALTH status indicators
*ACTIVITIES of daily living
*UNCERTAINTY
*APHASIA
*PATIENTS' attitudes
*EXPERIENCE
*QUALITATIVE research
*RESPONSIBILITY
*QUALITY of life
*COMMUNICATION
*QUESTIONNAIRES
*RESEARCH funding
*TECHNOLOGY
*CONTENT analysis
*THEMATIC analysis
*PSYCHOLOGY of the sick
Subjects
Details
- Language :
- English
- ISSN :
- 09638288
- Volume :
- 44
- Issue :
- 24
- Database :
- Academic Search Index
- Journal :
- Disability & Rehabilitation
- Publication Type :
- Academic Journal
- Accession number :
- 160623153
- Full Text :
- https://doi.org/10.1080/09638288.2021.1989501