Question prompt lists and caregiver question asking in pediatric specialty appointments: A randomized controlled trial.

Question prompt lists (QPLs) have been effective at increasing patient involvement and question asking in medical appointments, which is critical for shared decision making. We investigated whether pre-visit preparation (PVP), including a QPL, would increase question asking among caregivers of pediatric patients with undiagnosed, suspected genetic conditions. Caregivers were randomized to receive the PVP before their appointment (n = 59) or not (control, n = 53). Appointments were audio-recorded. Transcripts were analyzed to determine questions asked. Caregivers in the PVP group asked more questions (Mean PVP = 4.36, SD PVP = 4.66 vs. Mean control = 2.83, SD control = 3.03 , p = 0.045), including QPL questions (Mean PVP = 1.05, SD PVP = 1.39 vs. Mean control = 0.36, SD control = 0.81, p = 0.002). Caregivers whose child had insurance other than Medicaid in the PVP group asked more total and QPL questions than their counterparts in the control group (ps = 0.005 and 0.002); there was no intervention effect among caregivers of children with Medicaid or no insurance (p s = 0.775 and 0.166). The PVP increased question asking but worked less effectively among traditionally underserved groups. Additional interventions, including provider-focused efforts, may be needed to promote engagement of underserved patients. Patient/family-focused interventions may not be beneficial for all populations. Providers should be aware of potential implicit and explicit biases and encourage question asking to promote patient/family engagement. • A question prompt list increased question asking among pediatric patient caregivers. • But the question prompt list worked less effectively among underserved groups. • Additional interventions are needed to ensure research benefits diverse populations. • Improving engagement of underserved patients also requires changes by providers. [ABSTRACT FROM AUTHOR]