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Choreographing a good death: Carers’ experiences and practices of enacting assisted dying.

Authors :
Lewis, Sophie
La Brooy, Camille
Kerridge, Ian
Holmes, Alex
Olver, Ian
Hudson, Peter
Dooley, Michael
Komesaroff, Paul
Source :
Sociology of Health & Illness. Feb2024, p1. 19p. 1 Chart.
Publication Year :
2024

Abstract

The proliferation of assisted dying legislative reforms globally is a significant change in the social and medico‐legal landscape of end‐of‐life care. Understanding the impacts of these legislative reforms on family members who care for a dying person is vital, yet under‐theorised in research. In this article, drawing on semi‐structured interviews with 42 carers for a person who has sought assisted dying in Australia, and extending ideas of ontological choreography we explore the new and complex choreographies enacted by carers in their endeavour to arrange a ‘good death’ for the dying person. We find that desires to fulfil the dying person’s wishes are often accompanied by normative pressures, affective tensions and complexities in bereavement. Enacting assisted dying requires carers to perform a repertoire of highly‐staged practices. Yet, institutional obstacles and normative cultural scripts of dying can constrain carer assisted dying practices. Understanding the nuances of carers’ experiences and how they navigate this new end‐of‐life landscape, we argue, provides critical insights about how assisted dying legislation is producing new cultural touchpoints for caring at the end of life. Moreover, we show how emerging cultural scripts of assisted dying are impacting in the lives of these carers. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
01419889
Database :
Academic Search Index
Journal :
Sociology of Health & Illness
Publication Type :
Academic Journal
Accession number :
175565036
Full Text :
https://doi.org/10.1111/1467-9566.13761