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Multi-Stakeholder Opinion Statement on the Care of Individuals Born with Differences of Sex Development: Common Ground and Opportunities for Improvement.

Authors :
Cools, Martine
Cheng, Earl Y.
Hall, Joanne
Alderson, Julie
Amies Oelschlager, Anne-Marie
Balen, Adam H.
Chan, Yee-Ming
Geffner, Mitchell E.
Gravholt, Claus H.
Güran, Tülay
Hoebeke, Piet
Lee, Peter
Magritte, Ellie
Matos, Dina
McElreavey, Ken
Meyer-Bahlburg, Heino F.L.
Rink, Richard C.
Springer, Alexander
Szymanski, Konrad M.
Vilain, Eric
Source :
Hormone Research in Paediatrics. Feb2024, p1-17. 17p.
Publication Year :
2024

Abstract

<bold><italic>Background:</italic></bold> In the last 15 years, the care provided for individuals born with differences of sex development (DSD) has evolved, with a strong emphasis on interdisciplinary approaches. However, these developments have not convinced some stakeholders to embrace the current model of care. This care model has also paid insufficient attention to socio-cultural differences and global inequalities. <bold><italic>Summary:</italic></bold> This article is an opinion statement, resulting from in-depth discussions and reflection among clinicians, patients, and family support organizations based in the USA and Europe, where we seek areas of common ground and try to identify opportunities to further develop resources. The product of these conversations is summarized in 10 panels. The corresponding sections provide additional discussion on some of the panel items. <bold><italic>Key Messages:</italic></bold> Participants identified areas of agreement, gained a deeper understanding of the reasons behind disagreements on certain matters, and identified the necessary steps to foster future consensus. We offer preliminary recommendations for guiding clinical management and resource allocation. By promoting a broader consensus, we aim to enhance the quality of care and well-being for individuals of all ages who have a DSD. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
16632818
Database :
Academic Search Index
Journal :
Hormone Research in Paediatrics
Publication Type :
Academic Journal
Accession number :
177476318
Full Text :
https://doi.org/10.1159/000536296