SCN8A modified Delphi commentary.

The article discusses the use of a modified Delphi process in developing consensus guidelines for rare genetic epilepsies, specifically focusing on the SCN8A condition. The modified Delphi process involves incorporating the opinions of various stakeholders, including parents/caregivers, community partners, and physicians, to establish guidelines for diagnosis, treatment, and patient education. The article highlights the benefits of this approach, such as providing guidance in the absence of rigorous scientific evidence and incorporating patient perspectives. However, it also acknowledges the limitations of the process, including potential bias and the time commitment required. Overall, the article emphasizes the importance of consensus guidelines in navigating rare diseases and suggests that modified Delphi processes will continue to play a significant role in the field. [Extracted from the article]