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Patient Autonomy Problems in Palliative Care: Systematic Development and Evaluation of a Questionnaire
- Source :
-
Journal of Pain & Symptom Management . Sep2005, Vol. 30 Issue 3, p264-270. 7p. - Publication Year :
- 2005
-
Abstract
- Abstract: No instrument to assess autonomy problems in palliative care is currently available. The purpose of this study was to develop a comprehensive and concise questionnaire to measure autonomy problems in palliative cancer patients and to study its validity and reliability. We systematically developed a questionnaire through: a) a literature review of the concepts and elements of autonomy; b) qualitative analysis of interviews with patients and professional carers; c) the construction of questionnaires; and d) testing validity and reliability. The basic conceptual elements were: dependency, losing control, and limitation of activities. Patients with disseminated cancer in the palliative stage of the disease (n = 64) participated in the study. A 9-item Patient Autonomy Questionnaire (PAQ) was developed (Cronbach''s alpha 0.86), followed by a concise 4-item version (PAQs) (Cronbach''s alpha 0.71). Autonomy problems were more prevalent than pain problems. The development of the PAQ may help draw attention to autonomy problems. [Copyright &y& Elsevier]
- Subjects :
- *CANCER patients
*PSYCHOMETRICS
*QUALITATIVE research
*PALLIATIVE treatment
Subjects
Details
- Language :
- English
- ISSN :
- 08853924
- Volume :
- 30
- Issue :
- 3
- Database :
- Academic Search Index
- Journal :
- Journal of Pain & Symptom Management
- Publication Type :
- Academic Journal
- Accession number :
- 18342919
- Full Text :
- https://doi.org/10.1016/j.jpainsymman.2005.03.010