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CONSENT AND COMMUNITY ENGAGEMENT IN DIVERSE RESEARCH CONTEXTS: REVIEWING AND DEVELOPING RESEARCH AND PRACTICE.

Authors :
Bull, Susan
Phaik Yeong Cheah
Khin Maung Lwin
Marsh, Vicki
Molyneux, Sassy
Parker, Michael
Theobald, Sally
Source :
Journal of Empirical Research on Human Research Ethics. Oct2013, Vol. 8 Issue 4, p1-18. 18p.
Publication Year :
2013

Abstract

CONSENT AND COMMUNITY ENGAGEment (CE) in health research are two aspects of a single concern--that research is carried out in a respectful manner where social value is maximized. There are important overlaps and interdependencies between consent and CE; for example, CE can provide insights into how best to tailor consent to context and can be an important component of consent processes. Engaging communities can also have intrinsic and instrumental value beyond consent; for example, as a means of showing respect and identifying appropriate ways of working respectfully. In this paper we critically examine how CE and consent processes are characterized, conducted, and evaluated in diverse health research contexts, and propose a preliminary research agenda to support future learning in these critical areas. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
15562646
Volume :
8
Issue :
4
Database :
Academic Search Index
Journal :
Journal of Empirical Research on Human Research Ethics
Publication Type :
Academic Journal
Accession number :
91978059
Full Text :
https://doi.org/10.1525/jer.2013.8.4.1