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Protecting human research from an invasion of privacy: the unintended results of the Commonwealth Privacy Act 1988.
- Source :
-
Australian journal of public health [Aust J Public Health] 1991 Sep; Vol. 15 (3), pp. 228-34. - Publication Year :
- 1991
-
Abstract
- In accordance with the Privacy Act 1988 (Cth), interium guidelines for the protection of privacy in the conduct of medical research have been issued by the National Health and Medical Research Council (NHMRC) with the approval of the Privacy Commissioner. The guidelines are intended to ensure that the privacy of the individual is not interfered with when a researcher seeks the release of personal information held by a Commonwealth agency, or when a Commonwealth agency conducts medical research, and to ensure that the conduct of medical research is not inhibited by the privacy legislation. However, the procedures established by the guidelines and the responsibilities placed upon researchers and institutional ethics committees could themselves have the effect of inhibiting research. In considering amendment, NHMRC and the Privacy Commissioner are urged to produce final guidelines which do not act as the straw to break the back of the current system of institutional ethics committees, which seeks to ensure proper ethical scrutiny and the facilitation of human research.
- Subjects :
- Advisory Committees
Biomedical Research
Confidentiality legislation & jurisprudence
Ethical Review
Ethics Committees standards
Humans
New South Wales
Research standards
Research Personnel legislation & jurisprudence
Research Personnel standards
Social Responsibility
Time Factors
Civil Rights legislation & jurisprudence
Ethics Committees legislation & jurisprudence
Ethics Committees, Research
Government Regulation
Human Experimentation
Research legislation & jurisprudence
Research Subjects
Subjects
Details
- Language :
- English
- ISSN :
- 1035-7319
- Volume :
- 15
- Issue :
- 3
- Database :
- MEDLINE
- Journal :
- Australian journal of public health
- Publication Type :
- Academic Journal
- Accession number :
- 1932329
- Full Text :
- https://doi.org/10.1111/j.1753-6405.1991.tb00338.x