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Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border.
- Source :
-
BMC medical ethics [BMC Med Ethics] 2014 Feb 17; Vol. 15, pp. 12. Date of Electronic Publication: 2014 Feb 17. - Publication Year :
- 2014
-
Abstract
- Background: Community engagement is increasingly promoted as a marker of good, ethical practice in the context of international collaborative research in low-income countries. There is, however, no widely agreed definition of community engagement or of approaches adopted. Justifications given for its use also vary. Community engagement is, for example, variously seen to be of value in: the development of more effective and appropriate consent processes; improved understanding of the aims and forms of research; higher recruitment rates; the identification of important ethical issues; the building of better relationships between the community and researchers; the obtaining of community permission to approach potential research participants; and, the provision of better health care. Despite these diverse and potentially competing claims made for the importance of community engagement, there is very little published evidence on effective models of engagement or their evaluation.<br />Methods: In this paper, drawing upon interviews with the members of a Community Advisory Board on the Thai-Myanmar border, we describe and critically reflect upon an approach to community engagement which was developed in the context of international collaborative research in the border region.<br />Results and Conclusions: Drawing on our analysis, we identify a number of considerations relevant to the development of an approach to evaluating community engagement in this complex research setting. The paper also identifies a range of important ways in which the Community Advisory Board is in practice understood by its members (and perhaps by community members beyond this) to have morally significant roles and responsibilities beyond those usually associated with the successful and appropriate conduct of research.
- Subjects :
- Attitude to Health
Cooperative Behavior
Ethics, Research
Female
Humans
Male
Moral Obligations
Motivation
Myanmar epidemiology
Research Design
Research Personnel ethics
Social Perception
Thailand epidemiology
Advisory Committees ethics
Biomedical Research ethics
Community-Institutional Relations
Ethics Committees, Research
Informed Consent ethics
Subjects
Details
- Language :
- English
- ISSN :
- 1472-6939
- Volume :
- 15
- Database :
- MEDLINE
- Journal :
- BMC medical ethics
- Publication Type :
- Academic Journal
- Accession number :
- 24533875
- Full Text :
- https://doi.org/10.1186/1472-6939-15-12