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Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults.

Authors :
Ho AH
Luk JK
Chan FH
Chun Ng W
Kwok CK
Yuen JH
Tam MY
Kan WW
Chan CL
Source :
The American journal of hospice & palliative care [Am J Hosp Palliat Care] 2016 Jun; Vol. 33 (5), pp. 439-47. Date of Electronic Publication: 2015 Jan 14.
Publication Year :
2016

Abstract

Purpose: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents.<br />Methods: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups.<br />Results: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions).<br />Conclusions: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.<br /> (© The Author(s) 2015.)

Details

Language :
English
ISSN :
1938-2715
Volume :
33
Issue :
5
Database :
MEDLINE
Journal :
The American journal of hospice & palliative care
Publication Type :
Academic Journal
Accession number :
25588584
Full Text :
https://doi.org/10.1177/1049909114565789