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Patient knowledge and information-seeking about personalized cancer therapy.

Authors :: Rogith D
Yusuf RA
Hovick SR
Fellman BM
Peterson SK
Burton-Chase AM
Li Y
Bernstam EV
Meric-Bernstam F
Source :: International journal of medical informatics [Int J Med Inform] 2016 Apr; Vol. 88, pp. 52-7. Date of Electronic Publication: 2016 Jan 18.
Publication Year :: 2016
Abstract: Background: Understanding patients' knowledge and prior information-seeking regarding personalized cancer therapy (PCT) may inform future patient information systems, consent for molecular testing and PCT protocols. We evaluated breast cancer patients' knowledge and information-seeking behaviors regarding PCT.<br />Methods: Newly registered female breast cancer patients (n=100) at a comprehensive cancer center completed a self-administered questionnaire prior to their first clinic visit.<br />Results: Knowledge regarding cancer genetics and PCT was moderate (mean 8.7±3.8 questions correct out of 16). A minority of patients (27%) indicated that they had sought information regarding PCT. Higher education (p=0.009) and income levels (p=0.04) were associated with higher knowledge scores and with seeking PCT information (p=0.04). Knowledge was not associated with willingness to participate in PCT research.<br />Conclusion: Educational background and financial status impact patient knowledge as well as information-seeking behavior. For most patients, clinicians are likely to be patients' initial source of information about PCT. Understanding patients' knowledge deficits at presentation may help inform patient education efforts.<br /> (Copyright © 2016 Elsevier Ireland Ltd. All rights reserved.)