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Direct to consumer genetic testing and the libertarian right to test.
- Source :
-
Journal of medical ethics [J Med Ethics] 2016 Sep; Vol. 42 (9), pp. 574-7. Date of Electronic Publication: 2016 Mar 23. - Publication Year :
- 2016
-
Abstract
- I sketch a libertarian argument for the right to test in the context of 'direct to consumer' (DTC) genetic testing. A libertarian right to genetic tests, as defined here, relies on the idea of a moral right to self-ownership. I show how a libertarian right to test can be inferred from this general libertarian premise, at least as a prima facie right, shifting the burden of justification on regulators. I distinguish this distinctively libertarian position from some arguments based on considerations of utility or autonomy, which are sometimes labelled 'libertarian' because they oppose a tight regulation of the direct to consumer genetic testing sector. If one takes the libertarian right to test as a starting point, the whole discussion concerning autonomy and personal utility may be sidestepped. Finally, I briefly consider some considerations that justify the regulation of the DTC genetic testing market, compatible with the recognition of a prima facie right to test.<br /> (Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/)
- Subjects :
- Access to Information legislation & jurisprudence
Community Participation
Concept Formation
Humans
Ownership legislation & jurisprudence
Policy Making
Truth Disclosure
Access to Information ethics
Direct-To-Consumer Screening and Testing ethics
Freedom
Genetic Research ethics
Genetic Testing ethics
Ownership ethics
Subjects
Details
- Language :
- English
- ISSN :
- 1473-4257
- Volume :
- 42
- Issue :
- 9
- Database :
- MEDLINE
- Journal :
- Journal of medical ethics
- Publication Type :
- Academic Journal
- Accession number :
- 27009980
- Full Text :
- https://doi.org/10.1136/medethics-2015-102827