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Direct to consumer genetic testing and the libertarian right to test.

Authors :
Loi M
Source :
Journal of medical ethics [J Med Ethics] 2016 Sep; Vol. 42 (9), pp. 574-7. Date of Electronic Publication: 2016 Mar 23.
Publication Year :
2016

Abstract

I sketch a libertarian argument for the right to test in the context of 'direct to consumer' (DTC) genetic testing. A libertarian right to genetic tests, as defined here, relies on the idea of a moral right to self-ownership. I show how a libertarian right to test can be inferred from this general libertarian premise, at least as a prima facie right, shifting the burden of justification on regulators. I distinguish this distinctively libertarian position from some arguments based on considerations of utility or autonomy, which are sometimes labelled 'libertarian' because they oppose a tight regulation of the direct to consumer genetic testing sector. If one takes the libertarian right to test as a starting point, the whole discussion concerning autonomy and personal utility may be sidestepped. Finally, I briefly consider some considerations that justify the regulation of the DTC genetic testing market, compatible with the recognition of a prima facie right to test.<br /> (Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/)

Details

Language :
English
ISSN :
1473-4257
Volume :
42
Issue :
9
Database :
MEDLINE
Journal :
Journal of medical ethics
Publication Type :
Academic Journal
Accession number :
27009980
Full Text :
https://doi.org/10.1136/medethics-2015-102827