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Patient-Reported Outcomes in Glomerular Disease.

Authors :
Selewski DT
Thompson A
Kovacs S
Papadopoulos EJ
Carlozzi NE
Trachtman H
Troost JP
Merkel PA
Gipson DS
Source :
Clinical journal of the American Society of Nephrology : CJASN [Clin J Am Soc Nephrol] 2017 Jan 06; Vol. 12 (1), pp. 140-148. Date of Electronic Publication: 2016 Jun 03.
Publication Year :
2017

Abstract

Incorporation of the patient perspective into research and clinical practice will enrich our understanding of the status and management of patients with glomerular disease and may result in therapies that better address patient needs. In recent years, the importance of the patient experience of glomerular disease has become clear, and significant efforts have been undertaken to systematically capture and describe the patient's disease experience. Patient-reported outcome instruments provide a means to assess the patient's experience in a quantitative manner, thus enabling for comparisons within and between patients. Patient-reported outcome assessments are solely on the basis of a patient report about the status of their health without amendment or interpretation by a clinician or others. Patient-reported outcome assessments provide an opportunity to incorporate the patient perspective into clinical care, research, and clinical trials. Our paper provides an overview of terminology and development methods for patient-reported outcomes and reviews (1) currently available patient-reported outcome instruments appropriate for use in glomerular disease, (2) existing patient-reported outcome data in glomerular disease, and (3) opportunities for incorporating patient-reported outcome instruments into clinical care and research.<br /> (Copyright © 2016 by the American Society of Nephrology.)

Details

Language :
English
ISSN :
1555-905X
Volume :
12
Issue :
1
Database :
MEDLINE
Journal :
Clinical journal of the American Society of Nephrology : CJASN
Publication Type :
Academic Journal
Accession number :
27259977
Full Text :
https://doi.org/10.2215/CJN.13231215