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[Place of the expert patient in the R&D process in the field of rare diseases].
- Source :
-
Medecine sciences : M/S [Med Sci (Paris)] 2018 May; Vol. 34 Hors série n°1, pp. 28-29. Date of Electronic Publication: 2018 Jun 18. - Publication Year :
- 2018
- Subjects :
- Adolescent
Child
Cooperative Behavior
Female
Humans
Mucopolysaccharidosis III pathology
Mucopolysaccharidosis III therapy
Patient Advocacy standards
Patient Participation
Rare Diseases pathology
Role
Therapies, Investigational trends
Biomedical Research organization & administration
Expert Testimony
Patient Education as Topic
Professional-Patient Relations
Rare Diseases therapy
Subjects
Details
- Language :
- French
- ISSN :
- 1958-5381
- Volume :
- 34 Hors série n°1
- Database :
- MEDLINE
- Journal :
- Medecine sciences : M/S
- Publication Type :
- Academic Journal
- Accession number :
- 29911552
- Full Text :
- https://doi.org/10.1051/medsci/201834s114