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Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta.

Authors :
Mueller B
Engelbert R
Baratta-Ziska F
Bartels B
Blanc N
Brizola E
Fraschini P
Hill C
Marr C
Mills L
Montpetit K
Pacey V
Molina MR
Schuuring M
Verhille C
de Vries O
Yeung EHK
Semler O
Source :
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2018 Sep 10; Vol. 13 (1), pp. 158. Date of Electronic Publication: 2018 Sep 10.
Publication Year :
2018

Abstract

On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0-18 years with osteogenesis imperfecta.

Details

Language :
English
ISSN :
1750-1172
Volume :
13
Issue :
1
Database :
MEDLINE
Journal :
Orphanet journal of rare diseases
Publication Type :
Academic Journal
Accession number :
30201006
Full Text :
https://doi.org/10.1186/s13023-018-0905-4