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'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality.
- Source :
-
Autism : the international journal of research and practice [Autism] 2019 Aug; Vol. 23 (6), pp. 1431-1441. Date of Electronic Publication: 2018 Nov 29. - Publication Year :
- 2019
-
Abstract
- Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples' experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals' experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18-67 (mean = 38.9 years, standard deviation = 11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people's well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services.
- Subjects :
- Adolescent
Adult
Aged
Autistic Disorder psychology
Autistic Disorder therapy
Female
Health Services Accessibility
Humans
Male
Mental Disorders complications
Mental Disorders psychology
Middle Aged
Self-Injurious Behavior complications
Self-Injurious Behavior psychology
Surveys and Questionnaires
Young Adult
Autistic Disorder complications
Mental Disorders therapy
Self-Injurious Behavior therapy
Suicidal Ideation
Subjects
Details
- Language :
- English
- ISSN :
- 1461-7005
- Volume :
- 23
- Issue :
- 6
- Database :
- MEDLINE
- Journal :
- Autism : the international journal of research and practice
- Publication Type :
- Academic Journal
- Accession number :
- 30497279
- Full Text :
- https://doi.org/10.1177/1362361318816053