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Getting by with a little help from my friends: siblings report on the amount of informal support received by adults with disabilities.

Authors :
Sanderson KA
Burke MM
Urbano RC
Arnold CK
Hodapp RM
Source :
Journal of intellectual disability research : JIDR [J Intellect Disabil Res] 2019 Sep; Vol. 63 (9), pp. 1097-1110. Date of Electronic Publication: 2019 Apr 29.
Publication Year :
2019

Abstract

Background: Given decreased formal supports for adults with intellectual and developmental disabilities (IDDs) in many industrialised countries, we need to know more about informal, or natural, supports.<br />Method: Adult siblings (N = 632) responded to a web-based survey about the informal supports received by their brothers/sisters with IDDs.<br />Results: Informal support was organised by the life domains of recreation, employment and housing. Adults with IDDs received the most extensive informal support in recreation and the least extensive in housing; low levels characterised all domains. Individuals with greater numbers of supporters in a domain experienced higher levels of support, as did those residing with family and who received more state-supported, formal benefits.<br />Conclusions: Unpaid, informal supports supplement the support needs of adults with IDDs. Connections between formal and informal supports for adults with IDDs need to be examined further.<br /> (© 2019 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.)

Details

Language :
English
ISSN :
1365-2788
Volume :
63
Issue :
9
Database :
MEDLINE
Journal :
Journal of intellectual disability research : JIDR
Publication Type :
Academic Journal
Accession number :
31037774
Full Text :
https://doi.org/10.1111/jir.12622