How Should Biobanking Be Governed in Low-Resource Settings?

Authors :: Yakubu A
Munung NS
De Vries J
Source :: AMA journal of ethics [AMA J Ethics] 2020 Feb 01; Vol. 22 (2), pp. E156-163. Date of Electronic Publication: 2020 Feb 01.
Publication Year :: 2020
Abstract: Development of biobanks in Africa raises ethical questions related to particular features of African cancer research contexts, such as underresourced health care and research infrastructures and low-average research literacy. This article describes ethical challenges of informed consent, benefit sharing, and stigmatization and proposes navigating these challenges by developing a comprehensive governance framework to ensure African leadership in biobanking research programs in Africa.<br /> (© 2020 American Medical Association. All Rights Reserved.)