Back to Search Start Over

A Clinical Program for Transgender and Gender-Diverse Neurodiverse/Autistic Adolescents Developed through Community-Based Participatory Design.

Authors :
Strang JF
Knauss M
van der Miesen A
McGuire JK
Kenworthy L
Caplan R
Freeman A
Sadikova E
Zaks Z
Pervez N
Balleur A
Rowlands DW
Sibarium E
Willing L
McCool MA
Ehrbar RD
Wyss SE
Wimms H
Tobing J
Thomas J
Austen J
Pine E
Griffin AD
Janssen A
Gomez-Lobo V
Brandt A
Morgan C
Meagher H
Gohari D
Kirby L
Russell L
Powers MD
Anthony LG
Source :
Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53 [J Clin Child Adolesc Psychol] 2021 Nov-Dec; Vol. 50 (6), pp. 730-745. Date of Electronic Publication: 2020 May 06.
Publication Year :
2021

Abstract

Objective : A series of studies report elevated rates of autism and autistic characteristics among gender-diverse youth seeking gender services. Although youth with the co-occurrence present with complex care needs, existing studies have focused on co-occurrence rates. Further, clinical commentaries have emphasized provider-centered interpretations of clinical needs rather than key stakeholder-driven clinical approaches. This study aimed to employ community-based participatory research methodologies to develop a key stakeholder-driven clinical group program. Method : Autistic/neurodiverse gender-diverse (A/ND-GD) youth ( N = 31), parents of A/ND-GD youth ( N = 46), A/ND-GD self-advocates ( N = 10), and expert clinical providers ( N = 10) participated in a multi-stage community-based participatory procedure. Needs assessment data were collected repeatedly over time from A/ND-GD youth and their parents as the youth interacted with one another through ongoing clinical groups, the curriculum of which was developed progressively through the iterative needs assessments. Results : Separate adolescent and parent needs assessments revealed key priorities for youth (e.g., the importance of connecting with other A/ND-GD youth and the benefit of experiencing a range of gender-diverse role models to make gender exploration and/or gender affirmation more concrete) and parents (e.g., the need for A/ND-related supports for their children as well as provision of an A/ND-friendly environment that fosters exploration of a range of gender expressions/options). Integration and translation of youth and parent priorities resulted in 11 novel clinical techniques for this population. Conclusions : With generally high acceptability ratings for each component of the group program, this study presents a community-driven clinical model to support broad care needs and preferences of A/ND-GD adolescents.

Details

Language :
English
ISSN :
1537-4424
Volume :
50
Issue :
6
Database :
MEDLINE
Journal :
Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53
Publication Type :
Academic Journal
Accession number :
32375521
Full Text :
https://doi.org/10.1080/15374416.2020.1731817