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Registry of patients with congenital bleeding disorders and COVID-19 in Madrid.
- Source :
-
Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2020 Sep; Vol. 26 (5), pp. 773-778. Date of Electronic Publication: 2020 Aug 03. - Publication Year :
- 2020
-
Abstract
- Introduction: We present the first registry of patients with congenital bleeding disorders and COVID-19. The study has been carried out in the Community of Madrid, which has the highest number of cases in Spain. The objective is to understand the incidence of COVID-19, the course of the disease if it occurs and the psychosocial and occupational impact on this population.<br />Methods: We included 345 patients (246 of haemophilia, 69 of von Willebrand Disease, two rare bleeding disorders and 28 carriers of haemophilia). A telephone survey was used to collect the data.<br />Results: Forty-two patients presented symptoms suggestive of infection by COVID-19, and in six cases, the disease was confirmed by RT-PCR. The cumulative incidence of our series was 1.73%. It is worth noting the complexity of the management of COVID-19 in two patients on prophylaxis with non-factor replacement therapy. Adherence to the prescribed treatment was maintained by 95.5% of patients. Although 94% were independent for daily living activities, 42.4% had a recognized disability and 58% required assistance, provided by the Madrid Haemophilia Association (Ashemadrid) in 75% of cases. Only 4.4% of consultations were held in person.<br />Conclusions: Patients with congenital bleeding disorders infected with SARS-CoV-2 presented a mild course of the disease that did not require admission. Their identification and treatment by a specialist team from a Haemophilia Treatment Center are essential to make a correct assessment of the risk of haemorrhage/thrombosis. COVID-19 had a major impact on the psychosocial aspects of these patients which must be remedied with recovery plans.<br /> (© 2020 John Wiley & Sons Ltd.)
- Subjects :
- Adolescent
Adult
Aged
COVID-19 complications
Child
Child, Preschool
Hemophilia A complications
Humans
Infant
Infant, Newborn
Middle Aged
Spain epidemiology
Young Adult
von Willebrand Diseases complications
COVID-19 epidemiology
Hemophilia A epidemiology
Registries
von Willebrand Diseases epidemiology
Subjects
Details
- Language :
- English
- ISSN :
- 1365-2516
- Volume :
- 26
- Issue :
- 5
- Database :
- MEDLINE
- Journal :
- Haemophilia : the official journal of the World Federation of Hemophilia
- Publication Type :
- Academic Journal
- Accession number :
- 32524712
- Full Text :
- https://doi.org/10.1111/hae.14089