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Caregiver Burden in Late-Stage Parkinsonism and Its Associations.
Caregiver Burden in Late-Stage Parkinsonism and Its Associations.
- Source :
-
Journal of geriatric psychiatry and neurology [J Geriatr Psychiatry Neurol] 2022 Jan; Vol. 35 (1), pp. 110-120. Date of Electronic Publication: 2020 Oct 23. - Publication Year :
- 2022
-
Abstract
- Background: Patients in the late stages of parkinsonism are highly dependent on others in their self-care and activities of daily living. However, few studies have assessed the physical, psychological and social consequences of caring for a person with late-stage parkinsonism.<br />Patients and Methods: Five hundred and six patients and their caregivers from the Care of Late Stage Parkinsonism (CLaSP) study were included. Patients' motor and non-motor symptoms were assessed using the UPDRS and Non-motor symptom scale (NMSS), Neuropsychiatric inventory (NPI-12), and caregivers' health status using the EQ-5D-3 L. Caregiver burden was assessed by the Zarit Burden Interview (ZBI).<br />Results: The majority of caregivers were the spouse or life partner (71.2%), and were living with the patient at home (67%). Approximately half of caregivers reported anxiety/depression and pain/discomfort (45% and 59% respectively). The factors most strongly associated with caregiver burden were patients' neuropsychiatric features on the total NPI score (r = 0.38, p < 0.0001), total NMSS score (r = 0.28, p < 0.0001), caring for male patients and patients living at home. Being the spouse, the hours per day assisting and supervising the patient as well as caregivers' EQ-5D mood and pain scores were also associated with higher ZBI scores (all p < 0.001).<br />Conclusion: The care of patients with late stage parkinsonism is associated with significant caregiver burden, particularly when patients manifest many neuropsychiatric and non-motor features and when caring for a male patient at home.
Details
- Language :
- English
- ISSN :
- 0891-9887
- Volume :
- 35
- Issue :
- 1
- Database :
- MEDLINE
- Journal :
- Journal of geriatric psychiatry and neurology
- Publication Type :
- Academic Journal
- Accession number :
- 33094677
- Full Text :
- https://doi.org/10.1177/0891988720968263