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Ethical Challenges for Pediatric Biobanks.
- Source :
-
Biopreservation and biobanking [Biopreserv Biobank] 2021 Apr; Vol. 19 (2), pp. 101-105. Date of Electronic Publication: 2021 Apr 12. - Publication Year :
- 2021
-
Abstract
- Biobank participation of children is an ethically complicated process as the vulnerability of this population is a concern throughout the entire process of biobanking. Some ethical issues are more prominent in pediatric biobanking and may not need to be considered in biobanking of adult specimens and data. These include assent, reconsent at the age of majority, capacity to consent, and consequences of genetic results on the child and family members. This article describes current processes and best practices described in the literature as well as our experience at the BC Children's Hospital BioBank, a pediatric institutional biobank in Vancouver, Canada. The focus is on processes more specific to pediatric biobanking, such as assent, as well as topics that affect the pediatric population differently compared to adult biobanking.
- Subjects :
- Canada
Child
Humans
Informed Consent
Biological Specimen Banks
Biomedical Research
Subjects
Details
- Language :
- English
- ISSN :
- 1947-5543
- Volume :
- 19
- Issue :
- 2
- Database :
- MEDLINE
- Journal :
- Biopreservation and biobanking
- Publication Type :
- Academic Journal
- Accession number :
- 33847522
- Full Text :
- https://doi.org/10.1089/bio.2020.0116