Seizure documentation in people living with epilepsy.

Seizure documentation is an essential component of epilepsy management. Not all persons with epilepsy choose to document their seizures, but many view the practice as essential to managing their disease. While seizure documentation is a valuable aspect of patient care, clinicians and patients must remain aware that seizure underreport and overreport commonly occur due to lack of seizure awareness. Additionally, in rare cases, persons with epilepsy may intentionally conceal their seizures from clinicians. The continued development of electronic seizure diaries and epilepsy self-management software provides patients with new and expanding options for seizure documentation and disease management. In order for these tools to be utilized most effectively, patient input must be central to their development. Given the limitations of seizure documentation, the development of accurate, non-invasive seizure detection devices is crucial for accurate seizure monitoring.
Competing Interests: Declaration of Competing Interest The authors declare the following financial interests/personal relationships which may be considered as potential competing interests: Jonathan Goldstein has no competing interests to report. Churl-Su Kwon has no competing interests to report. Michael Harmon has no competing interests to report. Alison Kukla has no competing interests to report. Jeffrey Buchhalter receives compensation for consulting work from Biocodex, the Epilepsy Foundation, Epilepsy Study Consortium, Epilog Care, Neurocrine Biosciences and UCB Pharma. Susan T. Herman receives grant support from the Epilepsy Foundation, NIH, Marinus Pharmaceuticals, and CREmedical, and compensation for consulting from BioSerenity. Susan McCallum has no competing interests to report. Lisa Raman has no competing interests to report. Brandy E. Fureman receives salary support from the Epilepsy Foundation, and grant funding from UCB Biopharma (Human Epilepsy Project 2), PCORI and the James M. Anderson Center for Health Systems Excellence (RI-PCC-2017 (sub: 03699), the CDC (1NU58DP006256-02-00), the National Association of Epilepsy Centers, and has no other conflicts of interest. Nathalie Jetté receives grant funding paid to her institution for grants unrelated to this work from NINDS (NIH U24NS107201, NIH IU54NS100064). She also receives an honorarium for her work as an Associate Editor of Epilepsia.
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