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Parents' experiences of using a hybrid closed-loop system (CamAPS FX) to care for a very young child with type 1 diabetes: Qualitative study.

Authors :
Kimbell B
Rankin D
Hart RI
Allen JM
Boughton CK
Campbell F
Fröhlich-Reiterer E
Hofer SE
Kapellen TM
Rami-Merhar B
Schierloh U
Thankamony A
Ware J
Hovorka R
Lawton J
Source :
Diabetes research and clinical practice [Diabetes Res Clin Pract] 2022 May; Vol. 187, pp. 109877. Date of Electronic Publication: 2022 Apr 22.
Publication Year :
2022

Abstract

Aims: To explore parents' experiences of using a hybrid closed-loop system (CamAPS FX) when caring for a very young child (aged 1-7 years) with type 1 diabetes.<br />Methods: Interviews with n = 33 parents of 30 children who used the system during a randomised controlled trial. Data analysis used a descriptive thematic approach.<br />Results: While some parents were initially reticent about handing control to the system, all reported clinical benefits to using the technology, having to do less diabetes-related work and needing less clinical input over time. Parents welcomed opportunities to enhance the system's efficacy (using Ease-off and Boost functions) as required. Parents described how the system's automated glucose control facilitated more normality, including sleeping better, worrying less about their child, and feeling more confident and able to outsource care. Parents also described more normality for the child (alongside better sleep, mood and concentration, and lessened distress) and siblings. Parents liked being able to administer insulin using a smartphone, but suggested refinements to device size and functionality.<br />Conclusions: Using a hybrid closed-loop system in very young children can facilitate greater normality and may result in a lessened demand for health professionals' input. Systems may need to be customised for very young children.<br /> (Copyright © 2022 Elsevier B.V. All rights reserved.)

Details

Language :
English
ISSN :
1872-8227
Volume :
187
Database :
MEDLINE
Journal :
Diabetes research and clinical practice
Publication Type :
Academic Journal
Accession number :
35469973
Full Text :
https://doi.org/10.1016/j.diabres.2022.109877