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Ethical Considerations for Discrete Choice Experiments with Caregivers.
- Source :
-
Journal of empirical research on human research ethics : JERHRE [J Empir Res Hum Res Ethics] 2022 Oct; Vol. 17 (4), pp. 426-430. Date of Electronic Publication: 2022 Jul 18. - Publication Year :
- 2022
-
Abstract
- We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.
- Subjects :
- Child
Humans
Research Design
Caregivers
Ethics, Research
Subjects
Details
- Language :
- English
- ISSN :
- 1556-2654
- Volume :
- 17
- Issue :
- 4
- Database :
- MEDLINE
- Journal :
- Journal of empirical research on human research ethics : JERHRE
- Publication Type :
- Academic Journal
- Accession number :
- 35849082
- Full Text :
- https://doi.org/10.1177/15562646221112339