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Comprehension and Decision-Making Capacity Questionnaire About Palliative Care and Advance Care Planning: A Delphi Study.

Authors :
Trevizan FB
Paiva CE
Julião M
de Oliveira Valentino TC
Miwa MU
Mingardi M
D'Almeida Preto D
Ciorlia JB
de Angelis Nascimento MS
Kovács MJ
Dadalto L
de Oliveira LC
da Costa Rosa KS
Ribeiro Paiva BS
Source :
Journal of palliative care [J Palliat Care] 2023 Jan; Vol. 38 (1), pp. 41-51. Date of Electronic Publication: 2022 Sep 27.
Publication Year :
2023

Abstract

Objective(s): To develop a questionnaire that assesses the level of comprehension and decision-making capacity of patients with breast cancer about palliative care and advance care planning. Methods: Questionnaire items were based on the scientific literature. Delphi Consensus, a three-round survey with experts (n  =  14), evaluated the relevance, clarity, and redundancies of the items. A pretest with breast cancer patients (n  =  15) evaluated whether they comprehended each item and identified doubts or discomforts. Results: The initial questionnaire was composed of 38 items. After the Delphi, 18 items were restructured, six were added, and 16 were removed. In the pretest phase, all items with the survey header, guidelines, and Likert model were evaluated. All items accomplished ≥80% cut-off score and were kept as in the original version. The final version of the questionnaire have 28 itens and five domains: determination, responsibility, independence, self-knowledge, and knowledge of reality. Conclusions: This study represents the first step in the development of a questionnaire that may be used in oncology clinical practice. The main findings revealed that Delphi and pretesting increased the quality of the questionnaire, making it compelling to assess breast cancer patients' comprehension and decision-making capacity about PC and ACP.

Details

Language :
English
ISSN :
2369-5293
Volume :
38
Issue :
1
Database :
MEDLINE
Journal :
Journal of palliative care
Publication Type :
Academic Journal
Accession number :
36168276
Full Text :
https://doi.org/10.1177/08258597221128676