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Parental perspectives of outcomes following very preterm birth: Seeing the good, not just the bad.
- Source :
-
Acta paediatrica (Oslo, Norway : 1992) [Acta Paediatr] 2023 Mar; Vol. 112 (3), pp. 398-408. Date of Electronic Publication: 2022 Dec 19. - Publication Year :
- 2023
-
Abstract
- Aim: To describe parental perspective on health and developmental outcomes of their preterm child in relation to level of neurodevelopmental impairment (NDI).<br />Methods: A parental survey about their children aged 15-36 months corrected age born ˂29 weeks' gestation investigated parental concerns and positive attributes. Parental responses in relation to their child's level of NDI were examined using Kruskal-Wallis and chi-square for trend tests.<br />Results: One hundred ninety-nine parental responses were obtained for 163 children, including 44% with NDI. Vast majority of parents reported their children were developing well with good physical health. All parents, irrespective of NDI, reported their children were happy and had a positive personality. Appreciation of social interactions was higher for parents of children without versus with NDI (96% vs. 87%, p = 0.039). Parents of children with NDI were more likely to express concerns than those without NDI. Overall, development was the most common area of concern (45%), followed by the child's future (40%) and physical health (35%).<br />Conclusion: Parents of preterm children report many positive points and concerns, some of which are not examined in neonatal follow-up data. These parental perspectives could be used to inform parents of preterm infants, both antenatally and in the neonatal unit.<br /> (© 2022 Foundation Acta Paediatrica. Published by John Wiley & Sons Ltd.)
Details
- Language :
- English
- ISSN :
- 1651-2227
- Volume :
- 112
- Issue :
- 3
- Database :
- MEDLINE
- Journal :
- Acta paediatrica (Oslo, Norway : 1992)
- Publication Type :
- Academic Journal
- Accession number :
- 36479723
- Full Text :
- https://doi.org/10.1111/apa.16616