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Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients' individual emotional and informational needs while reducing potential harms.

Authors :
Bovbjerg K
Graves K
Waltz M
Farrell D
Yanez B
Chicaiza A
Omar R
Thompson R
Kop M
Van Denburg AN
Lorch D
Rowley SD
Rini C
Source :
Procedia computer science [Procedia Comput Sci] 2022; Vol. 206, pp. 195-205. Date of Electronic Publication: 2022 Sep 21.
Publication Year :
2022

Abstract

Cancer patients often want information from "peers" with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefits or reduce potential harms of written peer support, we gathered multiple forms of stakeholder feedback to inform the website's ethical approach, personalization, design, function, and content: a Community Advisory Board; a longitudinal study of patients' written peer support needs and motivations; focus groups; semi-structured interviews; and usability testing. Findings provide a rich foundation for website development.

Details

Language :
English
ISSN :
1877-0509
Volume :
206
Database :
MEDLINE
Journal :
Procedia computer science
Publication Type :
Academic Journal
Accession number :
36567868
Full Text :
https://doi.org/10.1016/j.procs.2022.09.098