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FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research.

Authors :
Alvarez-Romero C
Martínez-García A
Sinaci AA
Gencturk M
Méndez E
Hernández-Pérez T
Liperoti R
Angioletti C
Löbe M
Ganapathy N
Deserno TM
Almada M
Costa E
Chronaki C
Cangioli G
Cornet R
Poblador-Plou B
Carmona-Pírez J
Gimeno-Miguel A
Poncel-Falcó A
Prados-Torres A
Kovacevic T
Zaric B
Bokan D
Hromis S
Djekic Malbasa J
Rapallo Fernández C
Velázquez Fernández T
Rochat J
Gaudet-Blavignac C
Lovis C
Weber P
Quintero M
Perez-Perez MM
Ashley K
Horton L
Parra Calderón CL
Source :
Open research Europe [Open Res Eur] 2022 May 31; Vol. 2, pp. 34. Date of Electronic Publication: 2022 May 31 (Print Publication: 2022).
Publication Year :
2022

Abstract

Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make them Findable, Accessible, Interoperable, and Reusable (FAIR). To confirm the feasibility of the FAIR4Health solution, we performed two pathfinder case studies to carry out federated machine learning algorithms on FAIRified datasets from five health research organizations. The case studies demonstrated the potential impact of the developed FAIR4Health solution on health outcomes and social care research. Finally, we promoted the FAIRified data to share and reuse in the European Union Health Research community, defining an effective EU-wide strategy for the use of FAIR principles in health research and preparing the ground for a roadmap for health research institutions. This scientific report presents a general overview of the FAIR4Health solution: from the FAIRification workflow design to translate raw data/metadata to FAIR data/metadata in the health research domain to the FAIR4Health demonstrators' performance.<br />Competing Interests: No competing interests were disclosed.<br /> (Copyright: © 2022 Alvarez-Romero C et al.)

Details

Language :
English
ISSN :
2732-5121
Volume :
2
Database :
MEDLINE
Journal :
Open research Europe
Publication Type :
Academic Journal
Accession number :
37645268
Full Text :
https://doi.org/10.12688/openreseurope.14349.2