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The WebRA study: Opportunities and challenges in digital patient education from the perspective of patients with rheumatoid arthritis: A qualitative study.

Authors :
Knudsen LR
Lomborg K
Hauge EM
Zangi HA
de Thurah A
Source :
Patient education and counseling [Patient Educ Couns] 2023 Nov; Vol. 116, pp. 107969. Date of Electronic Publication: 2023 Sep 01.
Publication Year :
2023

Abstract

Objective: To explore patients' perceptions of digital patient education (PE), and how this contributes to self-management of rheumatoid arthritis (RA).<br />Methods: Individual interviews based on 'interpretive description' methodology. The patients were purposively selected from a randomized controlled trial that investigated the effects of digital PE. The analysis included a descriptive section, followed by the interpretation and extraction of the main messages.<br />Results: Overall, participants had positive perceptions of the e-learning program. Advantages were flexibility, the possibility for repetition, entertainment, availability, and learning in familiar surroundings. Disadvantages were unmet relational support needs due to missing dialogue with health care providers (HCPs). For the majority, a need for insight into the condition led to an active approach to using e-learning. The e-learning program facilitated knowledge acquisition about RA, but relational support from HCPs and a positive attitude toward living with RA were also important for achieving self-management.<br />Conclusion: Digital PE is useful for self-management support in RA, however different forms and combinations of PE must be offered in the future to accommodate various needs throughout the disease course.<br />Practice Implications: These results may inform future development and implementation of digital PE that adequately takes individual preferences for self-management support into account.<br />Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.<br /> (Copyright © 2023 The Authors. Published by Elsevier B.V. All rights reserved.)

Details

Language :
English
ISSN :
1873-5134
Volume :
116
Database :
MEDLINE
Journal :
Patient education and counseling
Publication Type :
Academic Journal
Accession number :
37672918
Full Text :
https://doi.org/10.1016/j.pec.2023.107969