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"Warrior who transcends adversity": A qualitative examination of resilience among mothers caring for adolescents with congenital heart disease.

Authors :
Huang CH
Chou CC
Chung HT
Wang JK
Mu PF
Chen SW
Shu YM
Chen CW
Source :
Journal of pediatric nursing [J Pediatr Nurs] 2024 Sep-Oct; Vol. 78, pp. e417-e423. Date of Electronic Publication: 2024 Aug 09.
Publication Year :
2024

Abstract

Purpose: Parenting resilience is essential for the well-being and development of children with chronic illnesses. Given the importance of parenting resilience in this context, this study explored the nature of parenting resilience among mothers caring for adolescents with congenital heart disease (CHD).<br />Design and Methods: We adopted Husserl's phenomenological approach and conducted semistructured in-depth interviews. In addition, we conducted purposive sampling at the pediatric cardiology outpatient departments of 2 medical centers in Taiwan to recruit 11 mothers of adolescents with CHD; all of these adolescents had received open-heart surgery. Furthermore, we analyzed data by using Colaizzi's approach, and we adhered to the COnsolidated criteria for REporting Qualitative research checklist.<br />Results: Mothers caring for adolescents with CHD was a dynamic process involving problem solving. The 11 mothers in this study employed resilience to remain strong, provided a sense of normalcy for their children, and approached challenges calmly and bravely. We uncovered three major themes among these mothers: "providing support for the child, "facing challenges with equanimity," and "overcoming adversity through positivity and gratitude."<br />Conclusions: The present results provide a deeper understanding of how mothers caring for adolescents with CHD can cultivate resilience.<br />Practice Implications: The study's findings can inform transitional programs for adolescents with CHD and their families, with nursing professionals supporting mothers' resilience.<br />Competing Interests: Declaration of competing interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.<br /> (Copyright © 2024 Elsevier Inc. All rights reserved.)

Details

Language :
English
ISSN :
1532-8449
Volume :
78
Database :
MEDLINE
Journal :
Journal of pediatric nursing
Publication Type :
Academic Journal
Accession number :
39122579
Full Text :
https://doi.org/10.1016/j.pedn.2024.08.003