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Beyond the 5-year recovery mark: Perspectives of researchers with lived and living experience on public engagement and discourse.

Authors :
Cioffi CC
Flinn RE
Pasman E
Gannon K
Gold D
McCabe SE
Kepner W
Tillson M
Colditz JB
Smith DC
Bohler RM
O'Donnell JE
Hildebran C
Montgomery BW
Clingan S
Lofaro RJ
Source :
The International journal on drug policy [Int J Drug Policy] 2024 Nov; Vol. 133, pp. 104599. Date of Electronic Publication: 2024 Sep 27.
Publication Year :
2024

Abstract

There has been growing attention toward including people with lived and living experience (PWLLE) with substance use, substance use disorders, and recovery in public-facing activities. The goals of including PWLLE in sharing their perspectives often include demonstrating that recovery is possible, destigmatizing and humanizing people who have substance use experiences, and leveraging their lived experience to illuminate a particular topic or issue. Recently, the National Council for Mental Wellbeing issued a set of guidelines entitled, "Protecting Individuals with Lived Experience in Public Disclosure," which included a "Lived Experience Safeguard Scale." We offer the present commentary to bolster some of the ideas presented by the Council and to articulate suggested changes to this guidance, with the goal of reducing unintentional gatekeeping and stigma. Specifically, we offer that there are numerous problems with the recommendation to only invite people who have "five or more years of sustained recovery" to contribute to public discourse. The idea of perceived stability after five years of abstinence is not new to us or the field. We suggest that this idea excludes people who have experienced the present rapidly changing substance use landscape, people who have briefly returned to use, some young people, and people with living experience who also can valuably contribute to public discourse. We offer alternative guidelines to the National Council for Mental Wellbeing and others seeking to promote practices that are inclusive to the diversity of PWLLE.<br />Competing Interests: Declaration of competing interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.<br /> (Copyright © 2024 Elsevier B.V. All rights reserved.)

Details

Language :
English
ISSN :
1873-4758
Volume :
133
Database :
MEDLINE
Journal :
The International journal on drug policy
Publication Type :
Academic Journal
Accession number :
39341070
Full Text :
https://doi.org/10.1016/j.drugpo.2024.104599