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Meeting report from the 3rd ISCBH-ERN BOND Achondroplasia Workshop on Long Bone Pathology in Children with Achondroplasia, Salzburg, Austria 22nd June 2024.
- Source :
-
Bone [Bone] 2025 Jan; Vol. 190, pp. 117268. Date of Electronic Publication: 2024 Oct 02. - Publication Year :
- 2025
-
Abstract
- A pre-meeting workshop on Long Bone Pathology in Children with Achondroplasia was held in Salzburg, Austria at the 11th International Conference on Children's Bone Health (ICCBH) 22-25 June 2024. There remains poor understanding and awareness amongst physicians managing achondroplasia of the underlying pathophysiology, radiology, natural history and orthopaedic procedures available for long bone deformities and restrictions. The structure of the workshop consisted of presentation of the results of a multinational patient survey on views of leg lengthening in achondroplasia, lectures, a debate and an interactive round table discussion. In total 150 attendees from 71 different cities and 31 countries were in attendance.<br />Competing Interests: Declaration of competing interest M.C has received honoraria from BioMarin, Ascendis, Tyra. I.A - I have nothing to declare. P.CI - I have nothing to declare. D.E - I have nothing to declare. M.M has received grant support from Pfizer, Novo Nordisk and Merck Serono and consultancy honoraria and speaker fees from Merck Serono, Novo Nordisk, Pfizer, Sandoz, and BioMarin. A.O. Honoraria: BioMarin, Alexion, InfoMed. Consultancy: BioMarin, Alexion. Grant: Alexion. D·P - I have nothing to declare. S.R. - I have nothing to declare. R.S. has received honoraria from BioMarin, QED pharma, Ascendis and Sanofi. M.S. has received grants by BioMarin Pharmaceutical Inc. and QED. BV declares board membership of the GEVR e.V. (https://www.gevr.de, German Limb Lengthening and Reconstruction Society (LLRS)) without compensation and board membership of the VKO e.V. (https://www.kinderorthopaedie.org, German-Speaking Paediatric Orthopaedic Society) without compensation, is paid consultant of Globus Medical/NuVasive (Audubon, USA) and Smith+Nephew (Watford, UK) and received payment for travel, presentations, and lectures from Globus Medical / NuVasive (Audubon, USA), Merete Medical (Berlin, Germany), Kyowa Kirin (Tokyo, Japan), Smith+Nephew (Watford, UK), OrthoPediatrics (Warsaw, USA), BioMarin Pharmaceuticals (Novato, USA) and Orthofix (Verona, Italy). K.M has received honoraria from BioMarin, QED biobridge, Novo-Nordisk.<br /> (Copyright © 2024 Elsevier Inc. All rights reserved.)
- Subjects :
- Child
Humans
Austria epidemiology
Bone and Bones pathology
Achondroplasia pathology
Subjects
Details
- Language :
- English
- ISSN :
- 1873-2763
- Volume :
- 190
- Database :
- MEDLINE
- Journal :
- Bone
- Accession number :
- 39366536
- Full Text :
- https://doi.org/10.1016/j.bone.2024.117268