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The Developmental Transition From Living With to Dying From Cancer: Hospice Decision Making.
- Source :
- Journal of Psychosocial Oncology; Sep/Oct2015, Vol. 33 Issue 5, p576-598, 23p
- Publication Year :
- 2015
-
Abstract
- Despite increasing utilization of hospice care, older adults with cancer enroll in hospice for shorter periods of time than those with other life-limiting illnesses. How older adults with cancer and their family members consider hospice is unknown. The purpose of this study was to compare decision making in late-stage cancer in people who enrolled in hospice with those who declined. Concepts from the Carroll and Johnson (1990) decision-making framework guided the development of a hospice decision-making model. The study design was exploratory-descriptive, cross-sectional, and used a two-group comparison. Qualitative and quantitative data were collected in the same interview. Open-ended questions were used to explore the illness trajectory and decision-making process. The interrelationships between functional ability, quality of life, and social support with hospice decision making were assessed using the Katz, QLQ-30, and Lubben Social Network Scales. Study participants included 42 older adults with cancer who had been offered hospice enrollment (24 non-hospice and 18 hospice) and 38 caregivers (15 non-hospice and 23 hospice); N = 80. The decisional model illustrates that the recognition of advanced cancer and information and communication needs were experienced similarly by both groups. There was interaction between the decisional stages: formulation of awareness and generation of alternatives that informed the evaluation of hospice but these stages were different in the hospice and non-hospice groups. The hospice enrollment decision represents a critical developmental juncture, which is accompanied by a transformed identity and substantive cognitive shift. Increased attention to the psychosocial and emotional issues that accompany this transition are important for quality end-of-life care. [ABSTRACT FROM PUBLISHER]
- Subjects :
- CANCER patients
COMPARATIVE studies
CONCEPTUAL structures
DECISION making
HOSPICE care
INTERVIEWING
RESEARCH methodology
PATIENTS
QUALITY of life
QUESTIONNAIRES
RESEARCH
RESEARCH funding
SELF-evaluation
T-test (Statistics)
QUALITATIVE research
ACTIVITIES of daily living
QUANTITATIVE research
SOCIAL support
THEMATIC analysis
CROSS-sectional method
DATA analysis software
MEDICAL coding
DESCRIPTIVE statistics
Subjects
Details
- Language :
- English
- ISSN :
- 07347332
- Volume :
- 33
- Issue :
- 5
- Database :
- Complementary Index
- Journal :
- Journal of Psychosocial Oncology
- Publication Type :
- Academic Journal
- Accession number :
- 109539953
- Full Text :
- https://doi.org/10.1080/07347332.2015.1067282