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Disclosures of Cystic Fibrosis–Related Information to Romantic Partners.
- Source :
- Qualitative Health Research; Aug2017, Vol. 27 Issue 10, p1575-1585, 11p
- Publication Year :
- 2017
-
Abstract
- In this article, we offer insights into how individuals with cystic fibrosis (CF) share information about their disease with a romantic partner. Using communication privacy management as a sensitizing theoretical construct, four themes emerged following 13 qualitative interviews with persons with CF. Themes about sharing CF-related information with a romantic partner include weighing the risks and benefits of sharing information, the role of health-related triggered rules, the motivations for disclosures, and the reactions from outsiders. Implications of the research suggest a need for more nuanced understandings of how privacy rules are communicated in relationships, how the mismanagement of co-owned information influences future disclosures, how the public–private nature of rare genetic illnesses is managed, and how people with genetic illnesses make disclosure decisions. [ABSTRACT FROM AUTHOR]
- Subjects :
- COMMUNICATION
CONCEPTUAL structures
CYSTIC fibrosis
EXPERIENCE
FERTILITY
GROUNDED theory
HEALTH status indicators
INTERPERSONAL relations
INTERVIEWING
RESEARCH methodology
MEDICAL ethics
MOTIVATION (Psychology)
PRIVACY
QUALITY of life
UNCERTAINTY
DISCLOSURE
THEORY
JUDGMENT sampling
SOCIAL support
THEMATIC analysis
Subjects
Details
- Language :
- English
- ISSN :
- 10497323
- Volume :
- 27
- Issue :
- 10
- Database :
- Complementary Index
- Journal :
- Qualitative Health Research
- Publication Type :
- Academic Journal
- Accession number :
- 124271548
- Full Text :
- https://doi.org/10.1177/1049732317697675