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The Latvian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Authors :
Rumba-Rozenfelde, Ingrida
Saulite, Ieva
Rubene, Ance
Razuka-Ebela, Danute
Maija-Butnere, Marisa
Consolaro, Alessandro
Bovis, Francesca
Ruperto, Nicolino
For the Paediatric Rheumatology International Trials Organisation (PRINTO)
Source :
Rheumatology International; Apr2018 Supplement, Vol. 38, p259-265, 7p, 2 Charts
Publication Year :
2018

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Latvian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (2% systemic, 56% oligoarticular, 17% RF negative polyarthritis, 25% other categories) and 204 healthy children, were enrolled at the paediatric rheumatology centre. The JAMAR components discriminated healthy subjects from JIA patients, except for the paediatric rheumatology quality of life (HRQoL), psychosocial health (PsH) subscales, the HRQoL total score and for the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Latvian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
01728172
Volume :
38
Database :
Complementary Index
Journal :
Rheumatology International
Publication Type :
Academic Journal
Accession number :
128996933
Full Text :
https://doi.org/10.1007/s00296-018-3959-7