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A Survey of Patient and Partner Outcome and Treatment Preferences in Mild Cognitive Impairment.

Authors :
Okonkwo, Ozioma
Smith, Glenn E.
Chandler, Melanie
Fields, Julie A.
Aakre, Jeremiah
Locke, Dona E.C.
Source :
Journal of Alzheimer's Disease; 2018, Vol. 63 Issue 4, p1459-1468, 10p
Publication Year :
2018

Abstract

<bold>Background: </bold>The patient-centered movement in health care is increasing efforts to design studies and interventions that address the outcomes that matter most to patients and their families. Research has not adequately addressed Alzheimer's disease patient and caregiver preferences.<bold>Objective: </bold>To survey the outcome and treatment preferences of patients and caregivers who had completed a multicomponent behavioral intervention for mild cognitive impairment (MCI).<bold>Methods: </bold>Extending prior work, we conducted an online survey regarding outcome and intervention preferences. Participants were patients with MCI and partners who completed the HABIT Healthy Action to Benefit Independence & Thinking ® program.<bold>Results: </bold>Both patient and partner respondents ranked patient quality of life as the highest priority, followed by patient self-efficacy, functional status, patient mood, and patient memory performance. Distressing behaviors and caregiver outcomes (burden, mood, and self-efficacy) had low rankings. Regarding the importance of HABIT ® program components, memory compensation training was ranked highest and wellness education lowest by all groups.<bold>Conclusion: </bold>Additional research should compare patient preference for patient reported outcomes, traditional neuropsychological and clinician outcomes, and modern biomarker outcomes. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
13872877
Volume :
63
Issue :
4
Database :
Complementary Index
Journal :
Journal of Alzheimer's Disease
Publication Type :
Academic Journal
Accession number :
129908969
Full Text :
https://doi.org/10.3233/JAD-171161