Back to Search
Start Over
What is a Medical Information Commons?
- Source :
- Journal of Law, Medicine & Ethics; Spring2019, Vol. 47 Issue 1, p41-50, 10p, 3 Charts
- Publication Year :
- 2019
-
Abstract
- A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions. [ABSTRACT FROM AUTHOR]
- Subjects :
- MEDICAL informatics
INFORMATION commons
INFORMATION sharing
MEDICAL genomics
HUMAN genetic variation
BIOLOGICAL research
MEDICAL research
BIOTIC communities
DATABASE management
GROUNDED theory
HEALTH
HEALTH promotion
HUMAN genome
INTERVIEWING
RESEARCH methodology
HEALTH policy
RESPONSIBILITY
TRUST
INFORMATION resources
ACCESS to information
HEALTH literacy
STAKEHOLDER analysis
Subjects
Details
- Language :
- English
- ISSN :
- 10731105
- Volume :
- 47
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- Journal of Law, Medicine & Ethics
- Publication Type :
- Academic Journal
- Accession number :
- 135929128
- Full Text :
- https://doi.org/10.1177/1073110519840483