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What is a Medical Information Commons?

Authors :
Bollinger, Juli M.
Zuk, Peter D.
Majumder, Mary A.
Versalovic, Erika
Villanueva, Angela G.
Hsu, Rebecca L.
McGuire, Amy L.
Cook-Deegan, Robert
Source :
Journal of Law, Medicine & Ethics; Spring2019, Vol. 47 Issue 1, p41-50, 10p, 3 Charts
Publication Year :
2019

Abstract

A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
10731105
Volume :
47
Issue :
1
Database :
Complementary Index
Journal :
Journal of Law, Medicine & Ethics
Publication Type :
Academic Journal
Accession number :
135929128
Full Text :
https://doi.org/10.1177/1073110519840483