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A low literacy targeted talking book about radiation therapy for cancer: development and acceptability.

Authors :
Smith, Sian K.
Meiser, Bettina
Cabrera-Aguas, Maria
Turner, Robin M.
Shaw, Joanne
Shepherd, Heather
Dhillon, Haryana M.
Milross, Christopher
Naehrig, Diana
Jackson, Michael
Saade, George
Bucci, Joseph
Halkett, Georgia K.B.
Source :
Supportive Care in Cancer; Jun2019, Vol. 27 Issue 6, p2057-2067, 11p
Publication Year :
2019

Abstract

<bold>Purpose: </bold>To develop a low literacy talking book (written book with accompanying audio-recording) about radiation therapy and explore its acceptability with patients and caregivers.<bold>Method: </bold>The talking book was developed iteratively using low literacy design principles and a multidisciplinary committee comprising consumers and experts in radiation oncology, nursing, behavioural sciences, and linguistics. It contained illustrations, photos, and information on: treatment planning, daily treatment, side effects, psychosocial health, and a glossary of medical terms. Semi-structured interviews were conducted with patients who self-reported low functional health literacy and caregivers to explore their views on the resource. Thematic analysis using a framework approach informed the analysis.<bold>Results: </bold>Participants were very satisfied with the content, illustrations, and language in the resource. Most were unfamiliar with the term 'talking book', but liked the option of different media (text and audio). The resource was seen as facilitating communication with the cancer care team by prompting question-asking and equipping patients and their families with knowledge to communicate confidently.<bold>Conclusions: </bold>The low literacy talking book was well accepted by patients and their caregivers. The next step is to examine the effect of the resource on patients' knowledge, anxiety, concerns, and communication with the cancer care team. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
09414355
Volume :
27
Issue :
6
Database :
Complementary Index
Journal :
Supportive Care in Cancer
Publication Type :
Academic Journal
Accession number :
136223845
Full Text :
https://doi.org/10.1007/s00520-018-4446-0