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Living and dying with incurable cancer: a qualitative study on older patients' life values and healthcare professionals' responsivity.
- Source :
- BMC Palliative Care; 7/20/2020, Vol. 19 Issue 1, p1-11, 11p
- Publication Year :
- 2020
-
Abstract
- Background: In ageing Western societies, many older persons live with and die from cancer. Despite that present-day healthcare aims to be patient-centered, scientific literature has little knowledge to offer about how cancer and its treatment impact older persons' various outlooks on life and underlying life values. Therefore, the aims of this paper are to: 1) describe outlooks on life and life values of older people (≥ 70) living with incurable cancer; 2) elicit how healthcare professionals react and respond to these. Methods: Semi-structured qualitative interviews with 12 older persons with advanced cancer and two group interviews with healthcare professionals were held and followed by an analysis with a grounded theory approach. Results: Several themes and subthemes emerged from the patient interview study: a) handling incurable cancer (the anticipatory outlook on "a reduced life", hope and, coping with an unpredictable disease) b) being supported by others ("being there", leaving a legacy, and having reliable healthcare professionals) and; c) making end-of-life choices (anticipatory fears, and place of death). The group interviews explained how healthcare professionals respond to the abovementioned themes in palliative care practice. Some barriers for (open) communication were expressed too by the latter, e.g., lack of continuity of care and advance care planning, and patients' humble attitudes. Conclusions: Older adults living with incurable cancer showed particular outlooks on life and life values regarding advanced cancer and the accompanying last phase of life. This paper could support healthcare professionals and patients in jointly exploring and formulating these outlooks and values in the light of treatment plans. [ABSTRACT FROM AUTHOR]
- Subjects :
- TUMOR diagnosis
PSYCHOLOGICAL adaptation
ATTITUDE (Psychology)
CANCER patients
CANCER patient psychology
GROUNDED theory
INTERVIEWING
RESEARCH methodology
MEDICAL personnel
PALLIATIVE treatment
QUALITY of life
RESEARCH funding
TERMINAL care
QUALITATIVE research
PSYCHOSOCIAL factors
PATIENTS' attitudes
PATIENT decision making
Subjects
Details
- Language :
- English
- ISSN :
- 1472684X
- Volume :
- 19
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- BMC Palliative Care
- Publication Type :
- Academic Journal
- Accession number :
- 144673862
- Full Text :
- https://doi.org/10.1186/s12904-020-00618-w