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Sources of Distress for Residents With Chronic Critical Illness and Ventilator Dependence in Long-Term Care.
- Source :
- Qualitative Health Research; Feb2021, Vol. 31 Issue 3, p550-563, 14p
- Publication Year :
- 2021
-
Abstract
- Limited understanding of the psychological challenges experienced by individuals with chronic critical illness hampers efforts to deliver quality care. We used an interpretive description approach to explore sources of distress for individuals with chronic critical illness in residential care, wherein we interviewed six residents, 11 family members, and 21 staff. Rather than discuss physical symptoms, sources of distress for residents were connected to feeling as though they were a patient receiving medical care as opposed to an individual living in their home. The tension between medical care and the unmet need for a sense of home was related to care beyond the physical being overlooked, being dependent on others but feeling neglected, frustration with limited choice and participation in decision making, and feeling sad and alone. Efforts to refine health care for individuals with chronic critical illness must foster a sense of home while ensuring individuals feel safe and supported to make decisions. [ABSTRACT FROM AUTHOR]
- Subjects :
- CATASTROPHIC illness
CHRONIC diseases
DECISION making
EMOTIONS
FRUSTRATION
HEALTH facilities
HOLISTIC medicine
INTERVIEWING
LONELINESS
LONG-term health care
RESEARCH methodology
MEDICAL care
MEDICAL needs assessment
NURSING home residents
PATIENTS
SADNESS
PSYCHOLOGICAL stress
TELEPHONES
MECHANICAL ventilators
QUALITATIVE research
DATA analysis
PSYCHOSOCIAL factors
RESIDENTIAL care
DATA analysis software
Subjects
Details
- Language :
- English
- ISSN :
- 10497323
- Volume :
- 31
- Issue :
- 3
- Database :
- Complementary Index
- Journal :
- Qualitative Health Research
- Publication Type :
- Academic Journal
- Accession number :
- 148071712
- Full Text :
- https://doi.org/10.1177/1049732320976373